Opportunity for Osteosarcoma patients and families
The University of Minnesota Masonic Cancer Center recently established the Biology of Osteosarcoma (BOOST) Registry and Biobank which offers a single location where every patient with osteosarcoma and their relatives can participate in research. The hope is that by gathering information on a very large number of osteosarcoma patients and their families from all over the world, researchers can gain a better understanding of osteosarcoma incidence and survival which may lead to the ability to predict who is susceptible, detect tumors when they are small and eventually a cure.
The BOOST registry and ongoing University of Minnesota osteosarcoma research is made possible in part through the Zach Sobiech Osteosarcoma Fund of the Children's Cancer Research Fund, as well as the Rein in Sarcoma Foundation.
If you are an osteosarcoma patient/ survivor or family member, please consider participating in the registry, or pass on the link to anyone you know who has been affected by osteosarcoma. According to the BOOST Registry webpage, participants will be asked to:
- Enroll in the BOOST registry
- Provide a DNA sample via mail
- Answer questions about themselves
Watch the video below for additional information: