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| Survivors
keeping rare cancer benefit alive |
- July 28, 2003
BY CYNTHIA BOYD
Pioneer Press
When Karen Wyckoff got around to the idea of having a party,
her time was already running out. She was losing the battle against
sarcoma, a rare and aggressive cancer.
All
the same, Karen wanted to celebrate life and help others like
her. More than 200 family and friends came to her first fund-raising
party two years ago.
Today, family, friends and hundreds more who didn't know Karen
will come together at the Rein in Sarcoma benefit to ride Cafesjian's
Carousel, tour the Marjorie McNeely Conservatory at Como Park,
enjoy music and donate to the Karen Wyckoff Sarcoma Research Fund.
Karen Wyckoff died Aug. 28, 2001, at age 25, but her legacy is
far greater than the $50,000 donated so far to the University
of Minnesota Cancer Center.
"It's raising a lot of money, but it's also raising awareness''
of the malignancy that occurs in connective tissues, said Kate
Ostrem, assistant director of development for the cancer center.
Ostrem said the event has become a forum for a "community
of folks who are dealing with sarcoma, or families who have lost
people to sarcoma.''
"It's like a great big network that keeps getting bigger,''
said Ruth Sorenson-Prokosch of St. Paul, one of a tight-knit group
of Karen's friends who, with her parents, Sue and Pete Wyckoff
of Shoreview, help keep the benefit going. People come for a good
time, Sorenson-Prokosch said.
Among the supporters is Juli Evers. She lost her 20-year-old
daughter, Sarah, a 2000 Fridley High School graduate who loved
children, to sarcoma last October. Evers, who now lives in Albany,
Minn., 20 miles northwest of St. Cloud, said the event helps get
the word out about a little-known cancer and "helps people
be more aware of how precious everyone's existence is."
Soft-tissue cancers, which are mostly sarcomas, are rare, occurring
each year in Minnesota in about 3.3 men per 100,000 and in about
2.5 women per 100,000, according to Sally Bushhouse, director
of the state's cancer registry. National numbers are similar.
Put another way, that means 130 people a year are diagnosed with
a soft-tissue cancer among 21,000 cancer diagnoses in Minnesota.
The small incidence can mean initial misdiagnosis. In Sarah Evers'
case, knee pain was first thought to be an athletic injury; in
Karen Wyckoff's case, a lump under the arm was first thought to
be benign.
Her parents say Karen probably should have been in a hospital
bed rather than on a merry-go-round that July evening two years
ago, but she wouldn't consider the idea.
"Nope,'' Karen had said, "We're having a party.''
The idea for the party and the carousel were Karen's "vision,"
said Abby Boehm of St. Paul, a friend from middle-school days.
Boehm's father, who is president of the nonprofit group that controls
Cafesjian's Carousel, helped make the group's use of the merry-go-round
possible. Karen had said that everybody else did walks, runs or
bike rides to raise money, but no one did carousels.
Friends and family describe her as someone who took the lemons
of life and made lemonade.
While undergoing cancer treatment, she couldn't tolerate anti-nausea
medicine, so she urged her friends to make donations to local
food shelves while she fasted. "It's so cliché to
say it, but (Karen) was so good in every way," Boehm said.
A 1994 graduate of Roseville Area High School, Karen was a National
Merit Scholar semifinalist who grew up in Falcon Heights and Shoreview
playing sports, cross-country skiing and learning piano and violin.
She raised money to fight hunger and multiple sclerosis and coached
soccer for children.
Karen was journeying toward death and she knew it, Sue Wyckoff
said, but she spent her life trying to change the world, right
up to the end. With Karen it wasn't, "This is unfair,"
her mother said. It was, "What can I do for someone else?"
When she appeared to be in remission, Karen joined the Lutheran
Volunteer Corps for a year to work for Legal Aid in north Minneapolis.
She had started work on a master's degree in public health when
the cancer returned, four years after diagnosis.
Two
months before she died, she coordinated the first benefit. "Karen
had insights far beyond her years,'' her father said, recalling
how his daughter had directed her parents to have a "grand
celebration" of her life and to cast her ashes into the Pacific
Ocean. The location is memorialized in a watercolor painting that
hangs in the Wyckoff's living room.
IF YOU GO
What: The Rein in Sarcoma benefit for the Karen Wyckoff
Sarcoma Research Fund at the University of Minnesota Cancer Center
When: 6:30 p.m. to 9 p.m. today (July 28, 2003)
Where: Cafesjian's Carousel and Marjorie McNeely Conservatory
in Como Park
Activities: Unlimited rides, conservatory tours, a silent
auction, Irish and Scottish ballads by Ross Sutter and jazz by
Larry McDonough
Suggested donation: $10 or more per individual, $20 or
more per family
More information: www.reininsarcoma.org
Cynthia Boyd covers Arden Hills, Falcon Heights, Lauderdale,
Mounds View, New Brighton and Shoreview. She can be reached at
cboyd@pioneerpress.com or 651-228-2116.
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The
Rein in Sarcoma Logo, created by Susan Vanderlinden
for RIS 2003, represents both a classic carrousel horse and
the sunflower that when used with the golden ribbon is the
symbol for finding a cure for Sarcoma Cancer. |
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