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Karen Wyckoff Rein In Sarcoma Fund
A Fund for Sarcoma Cancer Research, Education and Survivor Support
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Sarcoma Cancer Resources
Descriptions and links to Sarcoma Cancer Resources
The resources and links below will provide you an abundance of information and links to many of the best sarcoma resources in the country. This section of our website is organized as follows:
- The Place to Start
- Specific Types of Sarcoma Cancers - Grouped under Sarcomas of the Bone and then Soft Tissue Sarcomas. Many individual sarcomas are listed under each of these general headings
- General Cancer Resources- A more detailed list can be found on our General Cancer Resources page.
The Place to Start
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University of Minnesota Sarcoma Information Center is new a website specific to sarcomas. The site serves as a educational tool for both physicians and patients. This site is designed to provide current information about SARCOMAS, for patients, families, or relatives of someone who has been given the diagnosis or presumptive diagnosis of SARCOMA. The University of Minnesota has been a national and international leader in basic science, clinical research and the development of advances in the treatment of bone and soft tissue tumors. The information compiled on this site is derived from the interdisciplinary tumor team at the University of Minnesota. The Sarcoma Information Center is funded and sponsored by the Karen Wyckoff Rein in Sarcoma Fund. |
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Sarcoma Cancer Links |
| The ACOR (Association of Caner Online Resources) website is specially designed to make searching the World Wide Web for information about sarcoma cancer faster and easier. Click for a direct link to Sarcoma Cancer resources: | |
Specific Types of Sarcoma
Bone Sarcomas - Types of Sarcoma of the Bone(This list does not contain all types) |
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Bone Cancer Research http://www.medlib.iupui.edu/bcr/
Center for Orthopaedic Oncology and Musculoskeletal Research http://www.sarcoma.org/
Hopkins Musculoskeletal Oncology Unit http://www.path.jhu.edu/mou.html
OncoLink: Bone Cancer http://oncolink.upenn.edu/disease/bone1/
Bone Tumer.org http://www.bonetumor.org/
Osteosarcoma Resources http://www.ncl.ac.uk/~nchwww/guides/guide2o.htm
Osteo Sarcoma -- FOSTER Foundation
Ewings Sarcoma
European Intergroup Cooperative Ewing's Sarcoma Study http://www.staff.ncl.ac.uk/s.j.cotterill/eicess.htm
Ewing's Sarcoma Resources http://www.ncl.ac.uk/~nchwww/guides/guide2e.htm
Ewing's sarcoma St. Jude Children's Research Hospital http://www.stjude.org/medical/ewing.htm
OncoLink: Ewing's Sarcoma http://cancer.med.upenn.edu/disease/ewing/
Gastrointestinal Stromal Tumors ( GIST )
GIST Support International (GSI)
Leiomyosarcoma [LMS]
LeioMyoSarcoma (LMS)
National Leiomyosarcoma Foundation (NLMSF)
The Leiomyosarcoma Cancer website
Internet Resources for Leiomyosarcoma Patients, Families and Caregivers
Rhabdomyosarcoma
University of Pennsylvania : http://cancer.med.upenn.edu/types/article.cfm?c=14&s=54&ss=772&id=9486
Soft Tissue Sarcoma:Types of Soft Tissue Sarcoma (and the tissue it arises from) |
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OncoLink: NCI/PDQ Physician Statement: Childhood soft tissue sarcoma http://cancer.med.upenn.edu/pdq_html/1/engl/103085.html
Soft-Tissue Sarcoma http://www.mskcc.org/document/sarcoma.htm
Sugarbaker Oncology Associates http://www.surgicaloncology.com/
Understanding Soft Tissue Sarcomas: Information on diagnosis, treatment, chemotherapy, radiotherapy, surgery, resources http://www.cancerbacup.org.uk/info/sarcomas.htm
Alveolar Soft Part Sarcoma The Alliance Against Alveolar Soft Part Sarcoma (TAAASPS)
Kaposi's Sarcoma (Soft tissue sarcoma)
Infectious Disease Case 5 http://pathcuric1.swmed.edu/PathDemo/IND5/IND5140.HTM
OncoLink: Kaposi's Sarcoma http://cancer.med.upenn.edu/disease/kaposi/
Perforation of the jejunum secondary to AIDS-related gastrointestinal Kaposi's sarcoma http://www.pulsus.com/gastro/11_01/yosh_ed.htm
Research: Alvin E. Friedman-Kien, M.D. http://www.med.nyu.edu/Research/A.FriedmanKien-res.html
Uterine Sarcoma
GCF - Gynecologic Cancer Foundation http://www.sgo.org/gcf/
OBGYN.net Women and Patients http://www.obgyn.net/
OncoLink: NCI/PDQ Physician Statement: Uterine sarcoma http://oncolink.upenn.edu/pdq_html/1/engl/103371.html
Uterine Cancer - National Women's Health Information Center http://www.4woman.org/faq/cuterine.htm
Uterine sarcoma - National Cancer Institute http://cancernet.nci.nih.gov/cancer_Types/Uterine_Sarcoma.shtml
Virtual Hospital: Pathology Manual: Gynecologic Oncology http://www.vh.org/Providers/Textbooks/OBGYNOncology
General Cancer Resources
Click here for additional general cancer resources
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Children's Cancer Web is an independent non-profit site that was established in 1996 to provide a directory of childhood cancer resources. According to their site, their aim is to “ make it easier to find more specific childhood cancer information quickly. This is achieved by providing an index of some of the key cancer-related sites and pages”. They have information regarding Ewing 's sarcoma , osteosarcoma, rhabdomyosarcoma and other soft tissue sarcomas ( click here to access this information). The site also lists a set of points about quality of medical information on the Internet. |
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ESMO was established to advance the art, science and practice of medical oncology and disseminating knowledge in order to maintain a high common standard in medical practice for cancer patients. Among other things, ESMO develops clinical practice guidelines ( CPG ) to inform medical decisions in oncology will be important for the quality of care of cancer patients. The ESMO website contains clinical recommendations for Ewing’s Sarcoma of Bone , Osteosarcoma , and (soon) Soft Tissue Sarcomas. The complete list of clinical recommendations can be found by clicking here. ESMO's Patient Corner has a list of links that may be helpful to patients in various European countries. |
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Soft Tissue and Bone Sarcoma Group (STBSG of the EORTC) |
STBSG is one of the working groups of the European Organization for Research and Treatment of Cancer ( EORTC). The aims of the EORTC are to “ develop, conduct, coordinate, and stimulate laboratory and clinical research in Europe to improve the management of cancer and related problems by increasing survival but also patients’ quality of life.” The objectives of the STBSG are to “ develop, stimulate and co-ordinate studies on all aspects of the treatment of soft tissue sarcomas (STS) as well as to organize congresses, symposia and conferences to promote these studies". The STBSG has played a major role in the development of the Response Evaluation Criteria in Solid Tumors ( RECIST) criteria. STBSG's assurance program involves a " strict membership policy, central review of responses, central review of pathology, use of a systemic therapy checklist and on site monitoring visit". The STBSG currently has members from 56 institutions from 14 countries. |
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