by Julieann Selden
A sarcoma diagnosis is often as isolating as it is scary. Because of the rare and aggressive nature of the disease, patients are typically thrown into nerve-racking medical situations that are hard for others to understand. The physical, mental, and emotional challenges that sarcoma brings are unique and overwhelming.
When Karen Wyckoff was diagnosed with sarcoma in 1997, she felt alone in her experiences. Her prognosis was grim, and few people knew much about her cancer. In 2001, she founded Rein in Sarcoma with the vision of creating a sarcoma community- a place where patients, family members, friends, and neighbors could come together to support and encourage one another. The first event had over 250 people in attendance and raised over $10,000 for sarcoma research. Since that time, Rein in Sarcoma has grown dramatically, always keeping the need for community support in focus. Today, events, social media, and support groups are all available to bring survivors and family members together to help everyone feel less alone.