Sarcoma Cancer is a rare disease, often misdiagnosed, often afflicting children and young adults.
The Karen Wyckoff Sarcoma Foundation is dedicated to Sarcoma Cancer research, support and education...and the fight to find a cure.

About Karen

 

Karen Wyckoff was born on September 13, 1975.

Growing up in the Minnesota communities of Falcon Heights and Shoreview, and attending Roseville schools, Karen was always involved in many activities, including tennis, soccer, basketball, cross country skiing, piano, violin, and Girl Scouts.

In high school Karen was captain of the cross-country ski team, received the Gold Award in Girl Scouts and was a National Merit Semi-Finalist.

College and a misdiagnosis.

Karen went to college at Willamette University in Oregon, where she continued to be an active member of the campus and community. Karen was always socially conscious, and at Willamette, she was involved in Habitat for Humanity and was an integral part of bringing the AIDS quilt to the campus.

Because of an error in a biopsy done in Oregon during the spring of 1997, that said a growth in her armpit was benign; surgery done in June actually spread the sarcoma cancer. She knew after that first surgery that her prognosis was grim. She refused to stop living but instead lived more intensely. During the following summer and fall, Karen continued to be active, even while undergoing surgery, radiation and chemotherapy. She kept her summer-time job coaching tee-ball and pee-wee soccer and spent her fall completing Willamette course work by correspondence. Karen in Oregon

Through all of this she kept her humor and her hope. She called her managing oncologist, Dr. Randy Hurley "the Quarterback," but she also spent a lot of time doing her own research on Sarcoma and treatments. She felt strongly that a patient should be actively involved in their own care. Dr. Hurley was the perfect Dr. for her because he encouraged her involvement. She wrote funny descriptions of all of the medical personnel that she met. She wrote a poem "The Night before Chemo." She laughed and joked with her friends to the point that one doctor put in her chart that, the patient and friends were too light hearted about the situation. Karen was quite amused and said that was the point.

Karen returned to Willamette for the spring semester of her senior year and graduated with honors and B.A. in political science.  She and her friends found many ways to laugh and enjoy life. At graduation many people including professors were wearing buttons that said "Geesy Cow, You Honkin Weenie Doorknob" because Karen had convinced them all through her Minnesota Nights that we all talked that way. She lived what she believed. Two years later the Willamette Politics department would recognize that by naming their most meritorious political science major award after Karen. But at Willamette as always her most treasured memories were her friends.

Lutheran Volunteer Corps.

After she graduated she joined the Lutheran Volunteer Corps (LVC) for a year. She worked for Legal Aid in North Minneapolis for a year. She conducted intake interviews with clients, conducted legal outreach, served as a legislative advocate for homeless youth and investigated cases as needed. She and four roommates lived in North Minneapolis. They were provided with housing and health insurance and each received $80 a month for food. Karen and her roommates did much community service outside of their jobs. They also had a great deal of fun. They proved that you can have fun without money. They ran around the Community in Chili Pepper Costumes recording the comments they received. For entertainment they invited prominent politicians and community leaders to dinner to discuss the problems of the poor (and fed them pumpkin curry).

Cancer Returns.

In the fall of 1999, Karen enrolled at the University of Minnesota School of Public Health to pursue her Master's degree, but she again began to have health problems: the cancer had returned. Karen spent the next two years fighting her battle against cancer, all the while keeping everyone's spirits up (including her own).

She also continued to live her life to her fullest, taking part in multiple weddings, celebrating the birth of her niece, visiting with her family and friends, volunteering whenever she was feeling well and winning countless SkipBo games. She was a wonderful daughter, granddaughter, sister, aunt and friend, adding spark, intelligence, humor and support to the lives around her. From her preschool days to her last days, Karen never let anyone forget how much she loved and valued them.

Karen in Oregon during CollegeKaren spent her life trying to change the world. She coached little kids, teaching them to play and to enjoy soccer and tee ball. She visited the elderly in nursing homes, was a Chemo Angel for a six year old boy with cancer, participated in the MS 150 bike ride and MS Walk, and worked at Legal Aid.

Even when chemotherapy made her sick for days on end, Karen kept her sense of humor and her sense of justice. She solicited friends, family, and acquaintances to help her raise money for hunger relief through "Karen's Fasting Service-Using Chemo to fight hunger." People enrolled in the service and sent a donation to either Second Harvest or Oxfam. She earned over a thousand dollars for hunger causes. She figured that as long as the chemo forced her to fast, she might as well help the world!

The first "Rein in Sarcoma," July 2001...

Just two months before she died, Karen conceived and coordinated the first annual Rein in Sarcoma event. The event attracted over 250 friends and supporters and raised over $10,000 to support cancer research. Karen was always lighting fires within people to encourage them to change the world for the better.

She died in the arms of her parents and brother on August 28th, 2001 two weeks before her 26th birthday. Karen was always true to her friends and her values, and her spirit will live on, helping us all to make a difference in the world.

Ten years before her death, she wrote for a Roseville High School American Experience Class:

"I do not know what death is, but someday I too will die.

Hopefully, I will leave behind a better world for my passing.


I hope that when I die,


I will be able to look back on a life that was fulfilling


and was spent living, not waiting to die.


I hope that when the time comes for me to die, I will have learned


"enough of the meaning of life to be ready to die."
 
To read Karen's complete essay, click here.