The Karen Wyckoff Sarcoma Foundation is dedicated to Sarcoma Cancer research, support and education...and the fight to find a cure.
Jean St Pierre's Sarcoma Story
Jean St. Pierre
Type: Epitheliod Sarcoma
Cancer Free: Fourteen Years
It all started when I developed a lump on my right hand in 1987. I went to a physician who thought it was like a ganglion cyst. He took a syringe and tried to remove the fluid. Nothing came out. It was determined to be a solid tumor. The first surgery I had was in that year. It kept reoccurring and I had it removed three more times over the next 8 years. Each time I was told it was benign. In 1995, I again had the lump removed.
I was on summer break between my 1st and 2nd year of nursing school. It was supposed to be no big deal; the routine was to have the surgery, then be in a cast for about 2 weeks. So I go to my post operation visit with the physician and this is what I hear 'we sent the tissue to pathology', the pathologist called to say they are concerned about the tissue sample, they think you need to see a specialist.' I heard nothing after that, I left and went home. I was in a fog. Apparently an appointment was made for me to see an oncologist. I had to wait two weeks for an appointment due to a doctor’s convention going on the next week.
I was referred to an oncologist at Mayo Clinic, but for some reason my insurance would not pay for this. Even though they would not pay for a Mayo visit they could not find me an oncologist that was familiar with this type of cancer. It had now been over 2 weeks since I had this devastating news and I still did not have an appointment with a physician.
My sisters, Mary Jo and Nancy, started to call all the oncologists in the state. And this is how I came to meet Dr. Cheng at the University of MN Physicians. Up until this point everything was hurry up and then wait. My family and I met with 'The Team' as I called them. They had a plan, discussed everything with me and my family. They wanted to start immediately. I remember thinking they all looked so grim. So, for the next year I kept myself busy by having radiation treatments, surgery, more radiation treatments and physical therapy. I had chest x-rays every 3 months, then six months, then yearly until I was out 10 years.
That was over 14 years ago. I now consider myself a survivor. I went on to finish my nursing degree. I started to receive letters from my physicians about the Karen Wyckoff Foundation. This is how I came to meet Karen's parents Pete and Sue and all the wonderful volunteers from the foundation.
I hope by telling my story and working with the foundation this will help others find the best care available to them.