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Featured Volunteer Needs – October 2017

Here are the volunteer positions that we are currently looking to fill:

Fund Development Committee

Want to make a difference? This may be the opportunity for you. Be a part of the Fund Development Committee (research possible grants, sponsorships, and advertisements). Volunteers can assist with grant writing (experience needed). Time Commitment: as desired. Internet and computer access required for research. Work remotely.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 3 or by email.

Apply for this position at: New Volunteer Form

Finance Committee

Primary responsibility for oversight of the capital structure and financial activities. The committee members will maintain a regular review of financial activities and provide guidance when necessary. Committee will develop an investment strategy when necessary and ensure the preparation of the annual audit, tax form (990), and audited Financial Statements. Currently looking for a volunteer to perform audit/reconciliation duties.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 3 or by email.

Apply for this position at: New Volunteer Form

Patient and Family Support Committee

Rein in Sarcoma is looking for compassionate volunteers to help us better serve the needs of sarcoma patients and their loved ones. Our Patient and Family Support Committee reaches out to sarcoma patients and their loved ones by providing peer-to-peer mentoring, organizing social gatherings for those affected by sarcoma, providing gift bags for newly diagnosed and relapsed sarcoma patients, and by providing informational notebooks about sarcoma with hospital resources for sarcoma patients. This committee has monthly meetings and attends gatherings throughout the year.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 3 or by email.

Apply for this position at: New Volunteer Form

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Sarcoma Scholar Boot Camp

2017-18 Sarcoma Scholars

2017-18 Sarcoma Scholars

August 10 was a beautiful day for a trip to Cannon Falls. All six of our 2017 Sarcoma Scholars and four Boot Camp "Faculty” assembled at the Mayo Clinic in Cannon Falls for an evening of Sarcoma information immersion. After filling their plates with pizza, the scholars sat down to hear four lectures on sarcoma.

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Sarcoma Unity Strengthens Us All

by Julieann Selden

Survivors at the Winter Gathering

Survivors at the 2017 RIS Winter Gathering


A sarcoma diagnosis is often as isolating as it is scary. Because of the rare and aggressive nature of the disease, patients are typically thrown into nerve-racking medical situations that are hard for others to understand. The physical, mental, and emotional challenges that sarcoma brings are unique and overwhelming.

When Karen Wyckoff was diagnosed with sarcoma in 1997, she felt alone in her experiences. Her prognosis was grim, and few people knew much about her cancer. In 2001, she founded Rein in Sarcoma with the vision of creating a sarcoma community- a place where patients, family members, friends, and neighbors could come together to support and encourage one another. The first event had over 250 people in attendance and raised over $10,000 for sarcoma research. Since that time, Rein in Sarcoma has grown dramatically, always keeping the need for community support in focus. Today, events, social media, and support groups are all available to bring survivors and family members together to help everyone feel less alone.

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Recent and Upcoming Events