Sarcoma Cancer is a rare disease, often misdiagnosed, often afflicting children and young adults.
The Karen Wyckoff Sarcoma Foundation is dedicated to Sarcoma Cancer research, support and education...and the fight to find a cure.

Sarcoma Patient Starter Notebook

 Updated Third Edition Now Available

 

The new third edition of the RIS Sarcoma Patient Starter Notebook, the definitive publication for newly diagnosed sarcoma patients was initially  released in July 2010.  It was updated in November of 2011 with the support of the RIS Julian Baultrippe Fund.  This totally revised and updated Notebook provides support, hope, information and valuable resources. It is available as a 99 page PDF by clicking here or by requesting a hard cover loose leaf copy.

The third edition is edited by Emily Williams with significant medical support coming from Dr. Dan Mulroney MD. and the medical faculty of University of Minnesota Masonic Cancer Center.

All of the information found in this edition of the Notebook plus any updated material will be found shortly in an interactive format on this website under "Understanding Sarcoma".

 

You may download the updated Third Edition of the RIS Sarcoma Patient Notebook (January 2012) as a PDF clicking here.

If you are a sarcoma patient or loved one and you live in the United States or North America you can order a free hard copy of the Notebook by registering for the Rein In Sarcoma Support Network. To register, click here.

Chapter 6 - Health System Specific Information

For University of Minnesota Resources, click here.

For Children's Hospital of Minneapolis and St. Paul, click here.