As rare disease patient advocacy group, community members of Rein in Sarcoma are invited to participate in Rare Disease Day at the University of Minnesota. The Center for Orphan Drug Research (CODR) within the college of Pharmacy is hosting the event.
Rare Disease Day takes place on the last day of February each year. This is an opportunity to raise awareness with the general public, public policy makers, industry representatives, researchers, health professionals, and all who have a genuine interest in rare diseases. Let’s attend together. RSVP for this free event. by February 14.
We will host a Rein in Sarcoma information table – let us know if you can volunteer to advocate for sarcoma education, patient and family support and sarcoma research funding. Please call the RIS office with any questions or to volunteer: 763-205-1467.
9:00-10:30 | Patient Advocacy Group Breakfast & Networking Session
10:30-12:00 | Poster Symposium
12:00-2:30 | Formal Program