Rein in Sarcoma is very fortunate to have enthusiastic volunteers like Amy and Ruth Hoban.
Amy Hoban volunteers with the Patient and Family Support and the Marketing and Public Relations Committees. She’s now approaching one year out from her last radiation treatment and has had clear lung and abdomen scans quarterly.
I was diagnosed with “resembling” myxofibrosarcoma in June 2017. Need brought me to Rein in Sarcoma and community and achievement keep me involved as a volunteer. After asking to be partnered with a sarcoma mentor through RIS’s website, I attended a meeting with the Patient and Family Support Committee out of curiosity, and immediately felt welcomed. People talked about their sarcoma connections and inquired about mine without prying. I felt I could be as private or public about my sarcoma story as I wanted.
Talking with other people was comforting and educational. I felt like I belonged. The RIS community feels good whether it’s celebrating or commiserating. I feel privileged to be a part of Rein in Sarcoma as it grows to the next level. Rein in Sarcoma is achieving better outcomes and better survival rates and I want to be a part of it.