Leiomyosarcoma Symposium Highlights

Annie Achee and Dr. Scott Okuno

Annie Achee, National Leiomyosarcoma Foundation and Dr. Scott Okuno, Mayo Clinic

Andy Hughes

Andy Hughes, 2017-18 Sarcoma Scholar

On July 14th, more than 80 people from Minnesota, the Midwest and nation attended an outstanding day-long Leiomyosarcoma (LMS) Patient Education Symposium at Mayo Clinic. The program was designed by Dr. Scott Okuno for patients, their families and the public. Ten sarcoma specialists practicing at the Mayo Clinic in Rochester, MN spoke on their areas of expertise. The day was filled with opportunities to learn from medical experts as well as talk and connect with one another with renewed hope. Mayo Clinic has graciously offered access to program videos for each topic.

Highlights of the day included information on diagnosing LMS, state of the art treatment options, research and clinical trials. In addition, two LMS patient survivors along with Andrew Hughes, 2017 Rein in Sarcoma Scholar, shared their personal stories and connection to LMS. The program closed with several presenters participating in a 30-minute Q & A panel discussion, and a tour of the Proton Beam Therapy Center.

This education symposium marks the first time Rein in Sarcoma has worked in collaboration as a co-sponsor with another sarcoma organization, the National Leiomyosarcoma Foundation, and the Mayo Clinic, to provide education on soft tissue sarcoma, and specify Leiomyosarcoma. Another education symposium is proposed for the spring of 2020.

Thank you to all involved in designing, leading and presenting at this excellent symposium! Special thanks to symposium course director and Rein in Sarcoma board member, Dr. Scott Okuno, the Mayo Clinic, the National Leiomyosarcoma Foundation, and the volunteers and families of Rein in Sarcoma who work together supporting mission outreach.2018 LMS Symposium