Over a dozen sarcoma advocacy groups, some which focus on specific sarcoma sub-types and those covering all types of sarcoma, met in Chicago on June 1, with the purpose of forming a coalition to “achieve more – together.” The purpose of the Sarcoma Patient Advocacy Coalition (SPAC) is not to replace any organization, but by working together, the individual organizations hope to leverage their collective strength to make a greater impact in meeting the needs of the sarcoma community. All of the groups in attendance, by phone or in person, agreed that this idea has promise through the continuum of the sarcoma journey, from diagnosis and treatment, to survivorship and quality of life issues.
The group decided that concentrating on a just a few areas would be the best use of available time and talent. In addition to the Educational Work Group, the coalition is in the process of determining the focus of a second work group. All work groups will be made up of representatives of the member organizations.Read More