Latest News and Events

Largest Gathering of Sarcoma Doctors and Researchers Meet in Rome

2018 CTOS Doctors and Sue Wyckoff

2018 CTOS UMN Research Poster

2018 CTOS Sarcoma Coalition members

Rein in Sarcoma co-founders Pete and Sue Wyckoff joined more than 1,200 sarcoma doctors and researchers from around the World for the 2018 Annual Conference of the Connective Tissue Oncology Society (CTOS) in Rome, Italy this past November. Pete and Sue represented both Rein in Sarcoma and the newly formed national Sarcoma Coalition.

CTOS was an overwhelming and exciting experience. It was a great opportunity to learn about the progress as well as the failures of extraordinary doctors and researchers to find better therapies for all types of sarcoma cancers. Major sessions dealt with Soft Tissue Sarcomas: with unique sessions on Chemotherapy, Biology, Local Therapy, and Targeted Therapy, as well as major sessions on GIST, Intimal Sarcoma, Ewing Sarcoma, Osteosarcoma/Chondrosarcoma/Chordoma, Young Investigator Awards, Benign and Intermediate Grade Bone/Soft Tissue Lesions. View the complete program.

2018 CTOS Sarcoma Coalition

The third General Meeting of the Sarcoma Coalition was held in conjunction with CTOS and co-facilitated by Pete. Sixteen of the U.S. primary sarcoma organizations have joined the Sarcoma Coalition including Rein in Sarcoma. A listing of the Coalition’s member organizations and their major programs can be found at the its website. The meeting featured reports from its three Work Groups: Advocacy, Education and Cooperative Grant making and with additional coalition members attending via web link.

To learn more about the Sarcoma Coalition and its efforts to foster collaboration among U.S. based non-profit sarcoma organizations, visit its website or contact Pete Wyckoff at

Save the Date – Winter Gathering – January 27, 2019

The Singing Surgeon
Mark the afternoon of January 27, 2019 on your calendar now! The Rein in Sarcoma Patient and Family Support Committee is planning another wonderful Winter Gathering for all sarcoma patients, survivors, and families impacted by sarcoma. The afternoon will be filled with time for conversation, sharing stories and refreshments, special musical entertainment and informative presentations by sarcoma researchers and a nutritionist. We are especially excited to have the talented Dr. Elvis Francois and Dr. William Robinson, Mayo Clinic orthopedic surgery residents, who use their musical talents to inspire patients. Current details are below - check back for program updates:

Rein in Sarcoma Winter Gathering
Sunday, January 27, 2019 1:00 - 4:30 p.m.
Bachman's Lyndale Garden Center

RIS Researchers: Beau Webber, PhD - University of Minnesota
                               Kris Ann Schultz, MD - Children's Hospitals and Clinics of Minnesota
Nutritionist:         Jacalyn A. See, R.D.N., L.D - Mayo Clinic

Musical Entertainment: Dr. Elvis Francois, the Singing Surgeon accompanied by Dr. William Robinson

Building Community, Making Connections

As the year comes to an end, we reflect on the power of connection and the impact of our mission. We are excited to announce a $15,000 challenge match made possible by several generous RIS donors and our Board of Directors. Help us reach our $45,000 year-end goal!

This has been an extraordinary year for Rein in Sarcoma, including expansion of our educational and patient support work and the largest sarcoma research funding in our history. Please take a moment to read the compelling story of connection between Rein in Sarcoma volunteer and sarcoma survivor, Annette Bonaventura, and newly diagnosed sarcoma patient, Sophi, and her mother, Jenny, and how they worked together to raise awareness of sarcoma.

Annette, Sophie and Jenny

Annette, Sophi and Jenny

Sophie, sarcoma survivor


It takes unwavering support and dedication to defeat this terrible disease. Unique stories like Annette, Jenny and Sophi’s remind us of the importance of continuing our three-fold mission of patient support, research and education. With your help we will be able to expand our education of medical professionals, reach more patients and families impacted by sarcoma, and increase our sarcoma research funding at the University of Minnesota, Mayo Clinic and Children’s Hospitals and Clinics of Minnesota. Please consider making a donation.

You may want to consider a gift of stock, or other tax advantage giving strategy - see Charitable Gift Strategies.

Check back here on the progress towards reaching our goal (includes donation match).

$40,376 of our $45,000 goal!!

Each time we fund a research project, educate a physician, or support a patient you help change the story. Donate Now!

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