by Julieann Selden
A sarcoma diagnosis is often as isolating as it is scary. Because of the rare and aggressive nature of the disease, patients are typically thrown into nerve-racking medical situations that are hard for others to understand. The physical, mental, and emotional challenges that sarcoma brings are unique and overwhelming.
When Karen Wyckoff was diagnosed with sarcoma in 1997, she felt alone in her experiences. Her prognosis was grim, and few people knew much about her cancer. In 2001, she founded Rein in Sarcoma with the vision of creating a sarcoma community- a place where patients, family members, friends, and neighbors could come together to support and encourage one another. The first event had over 250 people in attendance and raised over $10,000 for sarcoma research. Since that time, Rein in Sarcoma has grown dramatically, always keeping the need for community support in focus. Today, events, social media, and support groups are all available to bring survivors and family members together to help everyone feel less alone.
Rein in Sarcoma volunteer Carol Skaja-Jacobsen was unsure about participating in the Chainbreaker bike ride, but she did it for the cause and had a great experience. Read about her experience below.
When I received the very first notification regarding the Chainbreaker ride, I immediately deleted it, thinking this would never interest me, nor would it be anything I would ever consider doing for a number of reasons.
When I saw that Dr. Cheng, who I am fortunate enough to administratively support in the Department of Orthopaedic Surgery at the University of Minnesota, was our department champion for Chainbreaker, I realized I wanted to help somehow, even if it was just volunteering on the day of the Chainbreaker ride.