In February of this year, the first annual FACTOR conference was held and my wife and I attended. It is a grass roots organization started by three people to bring together oncologists, scientists, survivors of osteosarcoma, those under treatment and parents of those being treated. It is unique in that it brought together in one place many people interested in furthering osteosarcoma treatment. FACTOR means: Funding; Awareness; Collaboration; Trials; Osteosarcoma; Research.
In this two-day event there were many scientific papers presented, as well as many breakout sessions for such things as meetings of kids under treatment; grief sessions for parents. One of the papers was presented by Theresa Beech, a unique aerospace engineer, who had pulled together many of the genetic abnormalities of osteosarcoma, had talked with experts around the country and was acting as a focal point for discussion, and ultimately new therapies.
Do you want to make a difference? Rein in Sarcoma needs YOU!
Our 17th annual Party in the Park is scheduled for July 24th. We need help with registration, auction, set up, tear down, raffle tickets, luminaries, merchandise, photography, concessions, children’s games, adult ring toss and more! Join us for the “All Hands Meeting” on Tuesday, May 16th to help us plan this amazing event.
Social time begins at 6:30 p.m. at the Wyckoff’s home: 3312 Richmond Ave, Shoreview, MN, with the meeting beginning at 7:00 p.m. Meet sarcoma survivors, passionate volunteers and leaders, and find a volunteer position that speaks to you! We appreciate your RSVP, but it’s most important that you attend!
Come get a first look at the amazing poster design by our graphic design volunteer, Val Lopez! We will be distributing posters in June, which we need help displaying at local hospitals, clinics, coffee shops, libraries, etc.
Raffle chair, Sarina McNamara, will also have raffle tickets available to distribute for those interested in preselling tickets for only $5! All proceeds will benefit Rein in Sarcoma’s three-pronged mission: patient and family support, education and research! More raffle information.
Bring items for the Silent Auction! As an added incentive – for each auction item secured by May 24, we will enter your name in a drawing for a pair of tickets to the Science Museum of Minnesota (six sets of tickets available, expiration June 30). For auction ideas, an example solicitation letter, gift-in-kind form – everything you need, see Auction details.
Looking forward to seeing you there!
Questions? Email Chelsey at email@example.com
Rein in Sarcoma totally relies on great volunteers (you!) for our success. Here are some current volunteer opportunities for which we have a special need.
Public Relations and Marketing Committee
Marketing Committee Member –
Rein in Sarcoma’s Marketing Committee will develop a comprehensive communications plan that will market and promote the mission of our organization. Committee members will make sure that our marketing tools will follow the organization’s brand. Marketing tools include but are not limited to: website, newsletter, social media, training, PowerPoints, letterhead, t-shirts, and print materials.
Public Relations Volunteers –
Rein in Sarcoma is looking for experienced Public Relations Volunteers who can help us expand our media presence but getting the Rein in Sarcoma story into the mass media. We’d like to spread the word about our Foundation in local print, radio and television media.
Social Media Sub-Committee –
Rein in Sarcoma is seeking a dedicated volunteer who is interested in assisting with social media, primarily Facebook. This volunteer should be organized, creative and have some experience with graphic design and photo editing. As part of the Marketing and Public Relations committee, it is preferred they are able to attend monthly meetings. Social media posts should be engaging, educational and insightful. Volunteer should be willing to seek out sarcoma stories in the media, local stories of sarcoma patients, educational articles about sarcoma, it’s various treatments, recent research, articles about survivorship, caregiving etc. Volunteer should also become familiar with our website and stay updated on current Rein in Sarcoma news and events.
For more information about these volunteer positions contact Connie Dow at Ph: 844-727-2662 ext 3 or by email.
Apply for these positions at: New Volunteer Form