Latest News and Events

Patient Education Symposium – Mayo Clinic, July 14

Mayo Clinic - Rochester, MN

Rein in Sarcoma, the National LeioMyoSarcoma Foundation and Mayo Clinic are jointly sponsoring a Soft Tissue Patient Education event on July 14, 2018 at Mayo Clinic in Rochester, MN. RIS board member, Dr. Scott Okuno, is the course director and has worked to design a day-long program for patients, their families, and the public, covering essential health issues surrounding leiomyosarcoma as well as other soft tissue sarcomas.

Mayo Clinic - Gonda Building
Geffen Auditorium - Subway Level
200 First Street SW
Rochester, MN

The day will include a broad range of topics, community time to share personal stories, food, and conclude with a Mayo Clinic Proton Beam Center tour. Registration is $15 and is limited to 200 people. The fee includes tuition, continental breakfast, lunch, break refreshments and the optional tour.

Rein in Sarcoma hope you find this a great educational opportunity - it marks the first time we have collaborated with partner organizations on an educational event of this scale. Please share the event with your sarcoma community members, we hope to see you there!

Read More

Volunteer Spotlight – Sarina Morrison

Susan McNamara, Sarina Morrison

Susan McNamara & Sarina



We would like to recognize Rein in Sarcoma volunteer Sarina McNamara Morrison this month. Diagnosed with sarcoma cancer at the end of 2014, Sarina came to know about RIS through the Patient Starter Notebook she received at the University of Minnesota. She gave a moving speech at the 2015 Party in the Park and has been involved in putting on the Party in the Park ever since, taking on the Raffle Chair position in 2017 and again this year. Don't forget to get your 2018 raffle tickets - very cool prizes! Sarina's employer, Ergodyne, has also shown their generosity through annual sponsorship of the Party in Park in honor of Sarina; this year, Ergodyne is sponsoring the raffle.

Sarina has also been an on-going member of the Patient and Family Support committee, which matches mentors to newly diagnosed patients, plans supportive events for those affected by sarcoma, and collects donations and assembles care packages and patient notebooks, which are distributed at local hospitals to newly diagnosed sarcoma patients. She was a member of the survivor panel for our 2017 Winter Gathering.

We appreciate your generous giving of your time and talents, Sarina. Thank you for inspiring and helping others.

Know an incredible RIS volunteer? Please email Chelsey Olafson at

Read More

Featured Volunteer Needs – May 2018

RIS Volunteers
RIS depends on volunteers to make our mission a reality. Current volunteer opportunities include:

March in a Parade to Raise Sarcoma Awareness

Do you enjoy a good parade? Always wanted to ride in a convertible, wave and throw candy to the crowds? Here's your chance. On Sunday, July 15 Rein in Sarcoma will be riding in the Monticello Parade starting at noon. Let us know if you'd like to join us.
Contact us at 763-205-1467 or by email.

Patient and Family Support Committee

Rein in Sarcoma is looking for compassionate volunteers to help us better serve the needs of sarcoma patients and their loved ones. Our Patient and Family Support Committee reaches out to sarcoma patients and their loved ones by providing peer-to-peer mentoring, organizing social gatherings for those affected by sarcoma, providing gift bags for newly diagnosed and relapsed sarcoma patients, and by providing informational notebooks about sarcoma with hospital resources for sarcoma patients. This committee has monthly meetings and attends gatherings throughout the year.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 3 or by email.

Apply for this position at: New Volunteer Form

Red Flags Committee

The Rein in Sarcoma Red Flags Committee is looking for volunteers who can help get the word out and educate the public about sarcoma cancers. This committee works with the Sarcoma Scholars, updates  the Patient Starter Notebook, attends medical conferences and other events to educate attendees about sarcoma cancers. Volunteers for the Red Flags Committee will attend events and meetings throughout the year.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 3 or by email.

Read More

Recent and Upcoming Events