Latest News and Events

RIS Gathering with Sarcoma Professionals at Mayo Clinic

RIS - Mayo Clinic meeting

Dr. Steven Robinson, Mayo Clinic and RIS Medical Advisory Board Member, hosted a meeting for his Mayo colleagues to find out more about Rein in Sarcoma’s current activities. Over lunch provided by the Red Flags Committee, Mayo Radiation Oncologist and RIS Medical Advisory Board Member Safia Ahmed, presented the new Rein in Sarcoma Patient Starter notebook. She and other Medical Advisory Board members provided new information and helped the Red Flags Committee bring the notebook up to date.

RIS Maudlin Sarcoma Scholars from Mayo, Taylor Weikittel and Mylan Blomquist, told about the many activities they have organized for Mayo Medical School Students to raise sarcoma awareness. They also summarized the survey they and the University of Minnesota scholars completed – asking former scholars about their experiences after their sarcoma scholar year. Kara Dolney, Mayo patient and RIS Patient and Family Support Committee member, spoke about her sarcoma experience and the RIS support available to Mayo sarcoma patients.

Dr. Steven Robinson

Pete Wyckoff and Dr. Robinson summarized the RIS research grants to Mayo and then led a discussion about further collaboration. Mayo Medical Staff attendees were very attentive and asked many questions. Molecular Pathologist Kevin Halling wrote the next day to say how much he enjoyed the meeting, “As a pathologist I don’t often get to see the direct patient care side of things and so I found yesterday’s meeting very enlightening. Again, thanks for all your work.”

Doctors and staff from departments that had not previously handed out Rein in Sarcoma Patient Notebooks eagerly took notebooks we had brought to start giving to their patients. Rein in Sarcoma and Mayo Clinic enjoy a great collaboration that encompasses Rein in Sarcoma’s three-pronged mission: sarcoma education, patient support, and funding sarcoma research. It was a great day of sharing ideas for all of us.

Raising Sarcoma Awareness Among Minnesota Athletic Trainers

Dick DeBlieck, Dr. Christian Ogilvie, Marlee Brice
Dick DeBlieck, Dr. Christian Ogilvie, Marlee Brice

Dr. Christian Ogilvie, UMN Associate Professor, Dept of Orthopaedic Surgery and Rein in Sarcoma Medical Advisory Board member, presented “When is a Musculoskeletal Condition a Tumor?” at the Minnesota Athletic Trainers’ Association 2019 Annual Meeting and Clinical Symposium on April 13.  Licensed athletic trainers as well as students enrolled in an accredited athletic training programs attended the event. Trainers came from clinic, high school, collegiate, and professional settings.

The Minnesota Athletic Trainers’ Association strives to improve the quality of health care for athletes, patients, and clients. They also want to enhance the profession of Athletic Training through leadership, education, and cooperative efforts with other organizations and allied health professions. Rein in Sarcoma was delighted to attend the symposium because athletic trainers could be the first to come in contact with individuals presenting symptoms suggesting sarcoma. By educating those who first see or hear about a lump or bump, patients will be diagnosed sooner and lives will be saved.

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Featured Volunteer Needs – April 2019

RIS Volunteers
RIS depends on volunteers to make our mission a reality. Current volunteer opportunities include:

Patient and Family Support Committee

Rein in Sarcoma is looking for compassionate volunteers to help us serve the needs of sarcoma patients and their loved ones. Our Patient and Family Support Committee reaches out to sarcoma patients and their loved ones by providing peer-to-peer mentoring, organizing social gatherings for those affected by sarcoma, providing totes of hope bags for newly diagnosed and relapsed sarcoma patients, and by providing informational notebooks to newly diagnosed sarcoma patients. This committee has monthly meetings and plans and attends several gatherings throughout the year. Next meeting is Tuesday, April 16.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for this position at: New Volunteer Form

Red Flags Education Committee

The Rein in Sarcoma Red Flags committee is looking for additional members to work on a variety of education programs for healthcare professionals and the public. Program needs include writing, editing and presenting. Depending on the project, time commitment will vary. If interested, please contact Sue Wyckoff or Naomi Bowman.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for this position at: New Volunteer Form

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