The Rein in Sarcoma Patient and Family Support Committee is again hosting a Fall Gathering, “Rein in Sarcoma Remembers,” for family and friends who’ve lost a loved one to sarcoma. The event will take place on Sunday, December 9, from 2:00 - 4:00 p.m. at the Silverwood Park Visitor Center in St. Anthony Park, MN. The gathering will include snacks and a social time to connect with others who have experienced a similar loss, a speaker on loss and grief, music, and a fun art project. It will be an afternoon that is both encouraging and uplifting. We hope you can join us! Check back for upcoming details.
Please RSVP using our online form or call Connie Dow at (763) 205-1467 by Wednesday, December 5.
Rein in Sarcoma Remembers
Sunday, December 9, 2018 3:00 - 5:00 p.m.
Silverwood Park Visitor Center
2500 County Rd E
St. Anthony Park, MN 55421
Rein in Sarcoma is very fortunate to have enthusiastic volunteers like Amy and Ruth Hoban.
Amy Hoban volunteers with the Patient and Family Support and the Marketing and Public Relations Committees. She’s now approaching one year out from her last radiation treatment and has had clear lung and abdomen scans quarterly.
I was diagnosed with “resembling” myxofibrosarcoma in June 2017. Need brought me to Rein in Sarcoma and community and achievement keep me involved as a volunteer. After asking to be partnered with a sarcoma mentor through RIS’s website, I attended a meeting with the Patient and Family Support Committee out of curiosity, and immediately felt welcomed. People talked about their sarcoma connections and inquired about mine without prying. I felt I could be as private or public about my sarcoma story as I wanted.
Talking with other people was comforting and educational. I felt like I belonged. The RIS community feels good whether it’s celebrating or commiserating. I feel privileged to be a part of Rein in Sarcoma as it grows to the next level. Rein in Sarcoma is achieving better outcomes and better survival rates and I want to be a part of it.
Sarcoma Scholar Boot Camp has provided intensive education on a little known disease to over 40 RIS scholars since the program’s 2009 inception. Dr. Kathryn Dusenbery, charter member of Rein in Sarcoma Board of Directors and the SH Levitt Chair in Radiation Oncology at the University of Minnesota, conducted the first Sarcoma Scholar Boot Camp.
The Boot Camp sets the stage in preparation for the rest of the scholars’ year. The scholars will attend tumor conferences with the medical staff, plan a lecture for their fellow medical students, and plan and carry out other events. They work primarily with their physician mentors, but also meet with the Red Flags Education Committee. All scholars plan a project that may be done individually or with another scholar.
This year’s Boot Camp was held September 6th at Mayo Clinic Health System in Cannon Falls.Read More