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RIS Update – Spring 2020

Janelle Calhoun

Dear Rein in Sarcoma Community Members,

Rein in Sarcoma Staff, Board of Directors, and Committees have quickly shifted focus from routine to formulating strategies for operations and planning as a result of COVID-19. Our approach is focused on the safety of our patients/ survivors, board and committee members, staff, and volunteers. We also completed a critical review of our financial situation, enacting measures which include a 20% percent budget cut and hiring freeze. This will ensure we will be serving our community until sarcoma cancer is quickly diagnosed, treatable, and ideally, extinct.

One key aspect in serving the Rein in Sarcoma community over the years is that we are a ‘high touch’ organization. Clearly, that is not an option at this time and requires rethinking how we approach our work and interact with our community. All meetings have moved to video conference calls, and some events, such as the Party in the Park, will be virtual, while others are pushed to later in the year – pending improved and safer in-person options. 

Please look for the 2019 Annual Report on our website, as we digitally release it through our Monthly Newsletter as well as on our Facebook, Twitter and Instagram accounts. Our Public Relations and Marketing, Finance, Patient and Family Support and Red Flags Education Committees, and Board continue to meet virtually to guide the work of Rein in Sarcoma according to our mission.

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Study of Sarcoma Familiarity Among Primary Care Practitioners

Croix Fossum RIS Scholar 2014-2015

Each year Rein in Sarcoma’s Jan Maudlin Sarcoma Scholars complete a project involving sarcoma cancer education and awareness. In 2015, some of the scholars conducted assessments of Minnesota primary care practitioners at two educational conferences. Their work, summarized by Dr. Croix Fossum, a scholar from Mayo Clinic and now at the Keck School of Medicine at USC, Los Angeles, CA, was published in the April 2020 Mayo Clinic Proceedings: Innovations, Quality & Outcomes.

We want to thank Dr. Scott Okuno for assisting with the publication. He is a Rein in Sarcoma Board Member, Research Committee member, and oversees the Jan Maudlin Sarcoma Scholars at the Mayo Clinic Alix School of Medicine.

We hope you will read “Assessment of Familiarity With Work-up Guidelines for Bone and Soft Tissue Sarcoma Among Primary Care Practitioners in Minnesota.”

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2019 Annual Report

2019 RIS Annual Report

As we look back to a strong 2019 and continue through our 20th year, we share the annual report with you and your families. Please take a moment to read it and celebrate the work we’ve accomplished together.

The report is in sharp contrast to our situation with the current pandemic. When we started gathering information for the annual report, the situation was in the early stages and difficult to comprehend. We’ve now watched it overwhelm entire countries and affect nearly every aspect of our daily lives.

Nevertheless, we are very proud of the progress we made together in 2019 and are eager to share it with you. Rein in Sarcoma will continue during these uncertain times to advance the mission guided by our fundamental pillars of education, research and patient support.

This month, in conjunction with the local and global #GiveAtHomeMN and #GivingTuesdayNow events to celebrate generosity and unity during tough times, we invite you contribute, if you’re able, to maintain our work together. We’d be incredibly grateful for your contribution in any amount. Donate here.

The work of Rein in Sarcoma would not be possible without your support.

Most importantly, we encourage you and family to take great care of yourselves and each other. We will get through this difficult time together.

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