This gathering will begin with our speaker, End of Life Doula, Christy Moe Marek, followed by an opportunity to unite in friendship and conversation. Snacks and beverages will be provided. We will follow social time with an outdoor hike through the nature preserve led by a Minneapolis Parks Naturalist within the North Mississippi Regional Park.
Please RSVP at the Rein in Sarcoma Facebook page event, Rein in Sarcoma Remembers, or call the office at 763-205-1467.
Carl W. Kroening Interpretive Center
4900 Mississippi Court
Minneapolis, MN 55430
A great time was had by by all at the August 25 Rochester Sarcoma Research Fundraiser. The event brought together sarcoma patients and families as well as Mayo Clinic medical professionals and their families for an afternoon of outdoor fun and music by Six Mile Grove band members, Brandon Sampson and John Wheeler. Drs. Steven Robinson and Britany Siontis of Mayo Clinic spoke to the attendees about Sarcoma and Rein in Sarcoma's mission, along with Sarcoma Survivor, Kara Dolney who related her sarcoma journey. Over $3000 was raised for RIS research funding at the first of what is hoped to be an annual event. Thanks to all the participants!
A special thanks to Dianna Robinson and the Dolney Family for their organization of this fun, successful event. Thanks to Little Thistle Brewing Co for hosting the event and Associated Bank for their generous support.
Duke Cancer Institute recently started distributing the Rein in Sarcoma Patient Starter Notebook to patients. The Notebook strives to provide information and support for patients and families fighting sarcoma. Rein in Sarcoma has recently released the 7th edition of the Patient Starter Notebook, which is being used by sarcoma patients around the globe.
Eugene Rossitch, Administrative Director for Duke Cancer Institute’s Gastrointestinal, Sarcoma and Melanoma disease groups, connected with Rein in Sarcoma and asked to have Notebooks for patients. Along with broadening the readership of the Notebook, his contributions included adding information about nearby hotels and providers specific to the Duke region. Rossitch likes how patients have access to many different resources. He also likes that the Notebook helps make patients aware of what the oncologists are doing to treat them. While Rossitch plays a more behind the scenes role with the Notebook, Nicole Mouser, RN interacts with patients on a personal level.
Nicole Mouser is the nurse clinician who provides patients with the Notebook once they have been diagnosed by a sarcoma doctor. She is, “A huge fan of the Notebook,” for many reasons. Usually when patients are first diagnosed, they go straight to the internet and are bombarded with information that could be false and not up to date. Mouser says that, “We diagnosis [the patients] and they walk out with information that is up to date and scientifically based.” Furthermore, Mouser, “Loves seeing their faces when we give it [the Notebook] to them.” Mouser really emphasizes the support systems and resource link in the Patient Starter Notebook since she strongly believes that patients and families will find that extremely useful. Mouser has had families that have emphasized how helpful they have found the Notebook.
Rossitch and Mouser are looking forward to what the future holds for the partnership between the Duke Cancer Institute and Rein in Sarcoma. Both hope to collaborate and work on more projects with Rein in Sarcoma in the upcoming months and years. Rein in Sarcoma, Rossitch and Mouser all agree that having a collaborative, inclusive environment for all is vital in ensuring that the best steps are taken to ease the fight for sarcoma patients. With the Rein in Sarcoma Patient Starter Notebook now being distributed to patients at Duke Cancer Institute we will be able to lend support to more people affected by sarcoma.
--Article by Miranda Mead