Latest News and Events

Leiomyosarcoma Symposium Highlights

Annie Achee and Dr. Scott Okuno

Annie Achee, National Leiomyosarcoma Foundation and Dr. Scott Okuno, Mayo Clinic

Andy Hughes

Andy Hughes, 2017-18 Sarcoma Scholar

On July 14th, more than 80 people from Minnesota, the Midwest and nation attended an outstanding day-long Leiomyosarcoma (LMS) Patient Education Symposium at Mayo Clinic. The program was designed by Dr. Scott Okuno for patients, their families and the public. Ten sarcoma specialists practicing at the Mayo Clinic in Rochester, MN spoke on their areas of expertise. The day was filled with opportunities to learn from medical experts as well as talk and connect with one another with renewed hope. Mayo Clinic has graciously offered access to program videos for each topic.

Highlights of the day included information on diagnosing LMS, state of the art treatment options, research and clinical trials. In addition, two LMS patient survivors along with Andrew Hughes, 2017 Rein in Sarcoma Scholar, shared their personal stories and connection to LMS. The program closed with several presenters participating in a 30-minute Q & A panel discussion, and a tour of the Proton Beam Therapy Center.

This education symposium marks the first time Rein in Sarcoma has worked in collaboration as a co-sponsor with another sarcoma organization, the National Leiomyosarcoma Foundation, and the Mayo Clinic, to provide education on soft tissue sarcoma, and specify Leiomyosarcoma. Another education symposium is proposed for the spring of 2020.

Thank you to all involved in designing, leading and presenting at this excellent symposium! Special thanks to symposium course director and Rein in Sarcoma board member, Dr. Scott Okuno, the Mayo Clinic, the National Leiomyosarcoma Foundation, and the volunteers and families of Rein in Sarcoma who work together supporting mission outreach.2018 LMS Symposium

Team Sarcoma Far Exceeds Goal

Team Sarcoma 25 milers
Team Sarcoma, made up of 31 sarcoma survivors, family, friends and co-workers, those who lost a family member or friend to sarcoma, Rein in Sarcoma volunteers, and University of Minnesota nurses, doctors, and staff, surpassed their goal by raising nearly $80,000 as part of the Chainbreaker bike ride, August 11. One-hundred percent of the dollars raised goes toward cancer research at the University of Minnesota Masonic Cancer Center, including sarcoma research.

Check out the team page and why each person rode – maybe you will be inspired to join us next year, or if you haven’t already, it’s not too late to make a donation in support of the team or a specific rider (accepted through October 12, 2018). Thank you to Team Sarcoma riders, Captain Tom Boardman, and their generous supporters!

While the weather was hot, the haze shielded riders from the sun, but made breathing more difficult. The route was enjoyable south of the Twin Cities – well, maybe not those long hills. And there were no injuries among Team Sarcoma – not even Drs. Cheng and Clohisy on the tandem bike! Yes, Carol Skaja-Jacobsen achieved her goal of 50 miles, as did the rest of the team members, whether 25, 50 or 100 miles.

Rein in Sarcoma partners with an external review committee of sarcoma experts (researcher and physicians) to select two to four research proposals to fund each year at the UMN Masonic Cancer Center. The grant recipients will be announced at our Patient and Family Winter Gathering in January 2019. Read about previous research grants.

Enjoy photos of Team Sarcoma from the Chainbreaker opening ceremony and the ride. Special thanks to photographers Ruth Hoban, Val Lopez Torres, and team support extraordinaire, Janelle Calhoun!

Theresa Fetsch – Development Director


Rein in Sarcoma Welcomes

Theresa Fetsch

Development Director

Theresa Fetsch - RIS Development Director

Rein in Sarcoma is very pleased to welcome Theresa Fetsch as our new Development Director. The search committee, made up of members of the Development Committee, the Talent and Resource Committee and Executive Director Janelle Calhoun, selected Theresa from a slate of excellent candidates. Theresa was able to start in time to join us at the Party in the Park!

Theresa brings prior event coordination and development experience from organizations such as the St. Paul Winter Carnival, Twin Cities Marathon, The Minneapolis Aquatennial, Minnesota Fighting AIDS on Bikes, and most recently, the Leukemia and Lymphoma Society Her education includes a Bachelor of Arts in Journalism and Advertising from St. Thomas as well as relevant leadership coursework.

We are looking forward to Theresa's leadership, working closely with the Development Committee, Executive Director, RIS Board and committee leadership, to insure long-term funding sustainability of Rein in Sarcoma's mission. Theresa is already engaged in the planning and execution of the upcoming RIS Golf Tournament and Fall Fundraiser.

Theresa says, “I'm thrilled to join the Rein In Sarcoma family as Development Director. I'm so passionate about fighting cancer and ultimately finding a cure because my father passed away from cancer, my niece is a cancer survivor, and my mom is a two-time cancer survivor. I'm really excited to get to work to support Sarcoma education, patients and their families and research."

You can reach Theresa at 1-844-727-2662 ext. 6 or

Welcome Theresa!

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