Neither rain, sleet, nor snow deterred our University of Minnesota Sarcoma Scholars, Alex Kuhne and Colleen Bell, from arranging an informational lecture for their medical school peers. After having to reschedule twice because of the inclement weather, the UMN-Twin Cities lecture was held on March 12. Dr. Katie Dusenbery gave a very informative lecture on sarcoma – how to diagnose it and the importance of getting the diagnosis quickly and correctly to improve the outcomes for patients.
She was followed by college freshman, Miranda Mead, who told of the agonizingly long time she was improperly treated and waited for an accurate diagnosis. After several months, her mother asked for an MRI and Miranda was diagnosed with Stage IV Ewing Sarcoma. Miranda completed her treatment two and a half years ago and is now disease free. The students listened attentively while enjoying pizza. The RIS Red Flags Education Committee provided each student with a golf ball with the red flags of sarcoma attached and asked them to fill out a survey on their thoughts of the golf ball as an educational tool.
A few days earlier on March 7, scholar Kyle Lau organized a sarcoma lecture at the University of Minnesota Duluth Medical School. Dr. Christian Ogilvie presented the sarcoma lecture and answered questions. Sarcoma survivor, Annette Bonaventura told the story of her long road to receiving an accurate diagnosis. She talked about having sarcoma in both her leg and arm and her ongoing work to regain as much function as possible.
The students were engaged throughout the evening. During the lectures they enjoyed a wonderful dinner from Kyle’s family’s restaurant. Following the lecture they stayed to talk with Dr. Ogilvie and Annette and to seek more information about sarcoma and the scholar application process. They also received the red flags of sarcoma golf balls. Both events were well received and we are grateful to Thrivent for providing grants to pay for the food.
Our Mayo Sarcoma Scholars are working to arrange an April sarcoma luncheon in Rochester.
Saturday, May 11, 8:00 a.m. – 2:00 p.m.
Minnesota Masonic Heritage Center
11411 Masonic Home Drive
Bloomington, MN 55437
The 14th Annual Cancer Survivorship Conference, a collaboration between University of Minnesota Physicians and University of Minnesota Medical Center, is an excellent opportunity for survivors, parents, and caregivers, as well as healthcare professionals, to explore issues survivors face after cancer treatment. The free conference will “focus on maintaining wellness, while exploring the issues survivors and their families often face after cancer treatment. Survivors and their support system will learn how to better advocate for themselves and lead full and productive lives.”
We’ve already begun work to ensure a fantastic Silent Auction at the 2019 Party in the Park. The auction is a major component of the fundraising that occurs at Rein in Sarcoma’s signature event. There are many ways to get involved and participate to make the auction a success. A primary task is identifying and obtaining great items for the auction, so if you have a large social network, love personal interaction and aren’t afraid of rejection- this is for you.
We also need people to request donations online from corporate sites – great if you want to contribute to the effort from home. Have savvy computer skills – we’d welcome you to work on printing display placards. We need volunteers to stage the auction before the event. And of course there is lots to do the day of the event, as we load and unload the auction truck, set up, run, and break down the auction. If you are interested or have questions please call Jason Patalonis at 651.221.0273 and bring a friend!
Want to work on auction item solicitation with others? Bring your laptop or other device and join our volunteer solicitation working groups – at the RIS Fridley Office:
Tuesday, April 2, 6:00 p.m. – 8:00 p.m.
Saturday, April 6, 12:00 noon – 2:00 p.m.
Wednesday, April 10, 12:00 noon – 2:00 p.m.
Thursday, April 18, 6:00 p.m. – 8:00 p.m.