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Make a Luminary to Honor Your Loved One

Luminaries

As the Party in the Park planning committee prepares for an online 20th anniversary celebration on July 27, we ask for community members to make luminaries at home this year. Please enjoy making your luminary to honor a sarcoma patient/ survivor or a loved one lost to sarcoma, and send in a photograph of the luminary. We will include all images received by June 16 in our closing ceremony. During a joint candle lighting ceremony hosted by our master of ceremonies, we will share a video of the luminary images with viewers at home from across the Midwest and the nation.

When you register for the 20th Anniversary be sure to check the box if you want a luminary kit mailed to your home. The luminary kit includes a white bag, a wax tea candle, and a carousel horse cut out image. Also, by registering, we will send you important email updates for viewing and participating in the online event.

Please send images of your luminary and name of the person it honors (In Memory of / In Honor of) to: marketing@reininsarcoma.org. Please submit by June 16 to be included in the online event. We will put all photos received in a RIS luminary photo album and shared on the website event highlights.

Upcoming Article to Raise Awareness

Rein in Sarcoma will reach over 10,000 medical professionals to promote sarcoma awareness through our upcoming feature article in Minnesota Medicine, the journal of the Minnesota Medical Association (MMA). The MMA, established over a century ago, is a non-profit professional organization representing physicians, residents and medical students. Minnesota Medicine provides readers with credible, up-to-date information affecting medical practice in Minnesota and is distributed to over 10,000 MMA members six times a year in both print and online formats.

Dr. Elsa Keeler, a pediatrician with HealthPartners, and volunteer freelance writer, Nikki L. Miller, wrote the article to speak directly to MMA members about the rare cancer and facilitate early detection by primary care doctors. “Partnering with the MMA in this way not only raises awareness about rare cancers, it also provides practical information for primary care doctors across our state to act on potential ‘red flags’ of sarcoma,” says Dr. Keeler.

Readers of Minnesota Medicine will learn that sarcomas are often misdiagnosed because they mimic common benign tumors and lesions, and that a “wait and see” approach can lead to misdiagnosis and unnecessary delays in treatment. Signs of sarcoma, as well as proper protocol for handling potential sarcomas, are discussed along with emerging treatment options and advances in technology. Patient stories are featured throughout the article to illustrate common sarcoma cancer scenarios that physicians may face.

The article also introduces Rein in Sarcoma and the resources we offer to the medical community, such as the Jan Maudlin Sarcoma Scholars program, annual research symposium, and research funding at the University of Minnesota, Mayo Clinic, and Children’s Minnesota. Readers will also be directed to patient resources such as the Rein in Sarcoma Patient Starter Notebook and our many forms of patient and family support.

Armed with this information, MMA members will be primed to proactively identify sarcomas and change the sarcoma story from “I never heard of it” to “We caught it early.” Look for the article in the July/August issue of Minnesota Medicine at: https://www.mnmed.org/news-and-publications/mn-medicine-magazine. We will also post links to the published article on our social media sites.  

Many thanks to Linda Picone, editor of Minnesota Medicine, and the Minnesota Medical Association for their partnership and interest in promoting sarcoma awareness among their membership.

Party in the Park Goes Virtual

RIS-20TH-Anniversary-logo

The 20th annual Party in the Park on Monday July 27th will be a virtual event. We will gather and interact as a community online, to celebrate 20 years of sarcoma education, research and patient support.

Watch for updates on how to connect on July 27th and how to participate in advance by sending photos of sunflowers, previous Party in the Park/ Sarcoma Family Picnic events, and luminaries.

Stay tuned for more information!

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