Resources for patients, caregivers and survivors

Here you will find resources for newly diagnosed patients, steps to be proactive, and finding important resources in the Midwest and across the country. Read on, and look for those areas that will provide you the greatest assistance in your situation, and most of all, to find hope.

2021 Patient Guidebook

Rein in Sarcoma Patient Guidebook

The RIS Sarcoma Patient Guidebook provides information and valuable resources for newly diagnosed sarcoma patients.

Questions to ask your doctor-2022

Questions to Ask Your Doctor

This resource was created by sarcoma survivors to help you faciliate discussion with medical professionals. This is a valuable resource for the newly-diagnosed sarcoma patient. Print to take to your appointments.

For Patients Facing Amputation

Dr. Edward Cheng of the University of Minnesota, presents moving stories of young people’s nervousness, courage, and optimism before and after amputation surgery in the treatment of bone sarcoma cancer.

Clinical Research Trials

Read about some cancer centers that often list the clinical trials being conducted.

Sarcoma Support Directory

Find support groups and organizations for patients and families going through sarcoma.

Wellness and Mental Health Resources

Resources to help you manage stress and anxiety, and enhance overall wellbeing.

Making Space for Grief

Grief Support-paused until early 2024

Have you lost a loved one to sarcoma? Rein in Sarcoma is hosting a monthly support group for those coping with grief and loss. This will be a small group of people who will provide one another with support during one of life’s most difficult experiences. You don’t have to go through the grieving process alone.

Financial, Legal, and Other Assistance

Find organizations and institutions that provide assistance for families and individuals facing financial, legal, and other hurdles due to cancer.

Wish Fulfillment Organizations

Organizations that provide chronically or seriously ill children and adults the opportunity to have a dream come true.