Tell Us Your Story

Rein in Sarcoma is honored to share your sarcoma story. We’ve put together some guidelines to help you write your story, or that of a loved one. We will share your story on our website.

If you would prefer to be interviewed and have one of our volunteers write the story, send us an email at If you would be willing to have your story videotaped, in addition to the written story, let us know that; we can arrange videotaping in the Twin Cities.

Story Guidelines:

  1. Describe an aspect of what you have experienced or learned during your sarcoma journey as a patient, survivor or loved one of someone who has/had sarcoma. Some prompts to help craft your story:
    • What was the most unexpected/surprising aspect of treatment?
    • What was your most frustrating moment or experience?
    • Were there any little gestures of kindness that you will remember?
    • Having been through what you have, and knowing what you know now- If you could go back in time and tell yourself one thing, what would it be?
    • Are there any myths about cancer or treatment that you wish to dispel?
  2. Ideal story length is 350 – 450 words
  3. Include one or two photos of the sarcoma patient/survivor. It works best to attach a jpeg format of the photo(s) to your email.
  4. We highly appreciate the following as we’ve found newly diagnosed patients are very interested in reading stories of people with similar diagnosis.
    • Type of Sarcoma
    • Year of Diagnosis
    • Area of body affected
  5. Rein in Sarcoma reserves the right to edit your story to fit our format
  6. By submitting your story, you agree to have it posted to our website (you can request to have it removed at any time)
  7. Send your story to or fill out the story form (you will have to email your photo).
  8. We will send you the link to your story via email when it is ready for review.

Links to some example stories in our new story format:

We hope you will share your sarcoma story with us and our readers, who find inspiration and hope in knowing there are others who have been on a similar journey to their own.