Sarcoma Stories

Memorial Stories

Bob Anderson

Fibrosarcoma

Diagnosis: 2006

Nicole Anderson

Leiomyosarcoma

Diagnosis: 2013

Bo Arvin

Epithelioid Sarcoma

Diagnosis: 2018

Julian Baultrippe

Osteosarcoma

Diagnosis: 2007

Richard Berqual

Leiomyosarcoma

Diagnosis: 2004

Doug Brame

Osteogenic Sarcoma

Diagnosis: 1981

Hallie Anne Brown

Osteosarcoma

Diagnosis: 2012

Sara Christensen

Angiosarcoma

Diagnosis: 2018

Bill Clemens

Synovial Sarcoma

Diagnosis: 2009

Nick Convey

Ewing’s Sarcoma

Diagnosis: 2012

Brett Dale

Ewing’s Sarcoma

Diagnosis: 2010

Therese Daniel

Leiomyosarcoma

Jerome Detviler

Leiomyosarcoma

Diagnosis: 2008

Alyssa Jeske Dobson

Epitheliod Sarcoma

Diagnosis: 2002

John Phillip Douglass

Ewing’s Sarcoma

Diagnosis: 2018

Perry Ford

Leiomyosarcoma

Diagnosis: 2013

Brendt Henrickson

Osteosarcoma

Diagnosis: 2000

Wade Hohol

Malignant Fibrous Histiocytoma

Diagnosis: 2007

Lora Holmquist

Epithelioid Sarcoma

Diagnosis: 2005

Katie Jurek

Osteosarcoma

Diagnosis: 2002

Diagnosis: 2005

Emilie Lemmons

Soft Tissue Sarcoma:

Diagnosis: 2007

Jacob Martell

Ewing Sarcoma

Diagnosis: 2004

Jackie Middleton

Leiomyosarcoma

Diagnosis: 2004

Heidi Minor

Leiomyosarcoma

Diagnosis: 2015

Beverly Osterman

Leiomyosarcoma

Diagnosis: 2004

Andrea Pomeroy

Leiomyosarcoma

Diagnosis: 2009

Anna Rogotzke

Rhabdomyosarcoma

Diagnosis: 2009

Christian Saumweber

Christian Saumweber

Spindle Cell Sarcoma

Diagnosis: 2020

Beverly Ann Schuld

Leiomyosarcoma

Diagnosis: 2001

Nick Shifflett

PNET Ewing Sarcoma

Diagnosis: 2008

John Shirk

John Shirk

Synovial Sarcoma

Diagnosis: 2009

Eric Skogman

Leiomyosarcoma

Diagnosis: 2008

Elinda Bates Wing

Adenosarcoma

Diagnosis: 1997

Laura Zeccardi

Laura Zeccardi

Chondrosarcoma

Diagnosis: 2013

Kathleen M Strum

Kathleen M Strum

Liposarcoma

Diagnosis: 2012

Thomas Worthley

Synovial Sarcoma

Diagnosis: 2014

Mark Wehner

Sarcoma:

Diagnosis: 2000

Karen Wyckoff

Synovial Sarcoma

Diagnosis: 1997

Survivor Stories

Ruth Bachman

(MFH) /Undifferentiated Pleomorphic Sarcoma(UPS)

Location: hand

Mel Bassett

Osteosarcoma

Location: leg

Heidi Bright

Highly Undifferentiated Endometrial Sarcoma

Location: uterus

Talia Beck

Ewing Sarcoma

Annette Bonaventura

Malignant Peripheral Nerve Sheath Tumor (MPNST)

Location: leg, hand

Peter Brown

Spindle Cell Sarcoma

Location: thigh

Oliver Carefull

Osteosarcoma

Location: leg

Aaron Conley

Epithelioid Sarcoma

Location: wrist

Maggie Cupit-Link

Ewing Sarcoma

Location: leg

Dick DeBlieck

Pleomorphic Sarcoma

Location: shoulder

Kara Dolney

Myxoid Sarcoma

Location: hand

Sarah Friedman

Ewing Sarcoma

Location: shoulder

Charlie Gerk

Telangiectatic Osteosarcoma

Location: leg

Lisa Griebel

Myxofibrosarcoma

Location: neck

Blake Hastings

Ewing Sarcoma

Location: foot

Theresa Hosfield

Chondrosarcoma

Location: pelvis/leg

Jody Johnson

Malignant Peripheral Nerve Sheath Tumor

Location: leg

Judy Jones

Judy Jones

Spindle Cell Synovial Sarcoma

Location: leg/lung

Tania Kibble

Ewing Sarcoma

Location: hip/leg

Toni Kittredge

Myxoid Liposarcoma

Location: abdomen

Kraig Kuusinen

Osteogenic Sarcoma

Location: leg, brain

Bob Laurenzo

Myxoid Liposarcoma

Location: groin

Nick Manzoni

Ewing Sarcoma

Location: leg

Jan Maudlin

Jan Maudlin

Myxoid Liposarcoma

Location: gluteus maximus

Miranda Mead

Miranda Mead

Ewing Sarcoma

Location: spine

Sarina Morrison

Undifferentiated Soft Tissue Sarcoma

Location: leg

Grace Nelson

Rhabdomyosarcoma

Location: foot

Conner O’Brien

Rhabdomyosarcoma

Location: throat

Chelsey Olafson

Malignant Peripheral Nerve Sheath Tumor

Location: back

Mary Anne Oldford

Leiomyosarcoma

Location: uterus

Alison Olig

Rhabdomyosarcoma

Location: pelvic cavity

Jess Porter

Osteosarcoma

Location: leg

Jonathan Reich

Ewing Sarcoma

Location: leg

Julie Rose

Rhabdomyosarcoma

Location: body

Chastity Sabanjo

Leiomyosarcoma

Location: eye

Brad Sauve

Ewing Sarcoma

Location: jaw

Mike Schurhamer

Synovial Sarcoma

Location: leg

Ken Selden

Mesenchymal Chondrosarcoma

Location: spine

Jean St. Pierre

Epitheliod Sarcoma

Location: hand

Allan Swartz

Undifferentiated Pleomorphic Sarcoma

Location: thigh

Scott Tjaden

Osteosarcoma

Location: knee

Lynn Von Korff

Undifferentiated Pleomorphic Sarcoma, UPS

Location: gluteus maximus

Natalie Wolf

Ewing Sarcoma, UPS

Location: side

Tell your story

We invite you to tell your sarcoma story as a patient, survivor, or someone who has lost a loved one to sarcoma. Rein in Sarcoma would be honored to share your story on our website. We hope you will share your sarcoma story with us and our readers, who find inspiration and hope in knowing there are others who have been on a similar journey to their own.

  1. Describe an aspect of what you have experienced or learned during your sarcoma journey as a patient, survivor or loved one of someone who has/had sarcoma. Some prompts to help craft your story:
    • What was the most unexpected/surprising aspect of treatment?
    • What was your most frustrating moment or experience?
    • Were there any gestures of kindness that you will remember?
    • Having been through what you have, and knowing what you know now- If you could go back in time and tell yourself one thing, what would it be?
    • Are there any myths about cancer or treatment that you wish to dispel?
  2. Ideal story length is 350 – 450 words
  3. Include one or two photos of the sarcoma patient/survivor. It works best to attach a jpeg format of the photo(s) to your email.
  4. We highly appreciate the following as we’ve found newly diagnosed patients are very interested in reading stories of people with similar diagnosis.
    • Type of Sarcoma
    • Year of Diagnosis
    • Area of body affected
  • Will Rein in Sarcoma edit my story?
    • Rein in Sarcoma reserves the right to edit your story to fit our format.
  • Do you accept stories in formats other than written?
    • If you would prefer to be interviewed and have one of our volunteers write the story, send us an email at webmaster@reininsarcoma.org. If you would be willing to have your story in video, let us know—we can arrange filming in the Twin Cities.
  • Can I request to have a story removed from your website?

Ready to tell your story?