Sarcoma Stories

Memorial Stories
Survivor Stories
Tell your Story

Memorial Stories

Bo Arvin

Epithelioid Sarcoma

Diagnosis: 2018

Wade Hohol

Malignant Fibrous Histiocytoma

Diagnosis: 2007

Survivor Stories

Ruth Bachman

(MFH) /Undifferentiated Pleomorphic Sarcoma(UPS)

Location: hand

Heidi Bright

Highly Undifferentiated Endometrial Sarcoma

Location: uterus

Annette Bonaventura

Malignant Peripheral Nerve Sheath Tumor (MPNST)

Location: leg, hand

Charlie Gerk

Telangiectatic Osteosarcoma

Location: leg

Irene Harper

Follicular Dendritic Cell Sarcoma

Location: abdomen

Jody Johnson

Malignant Peripheral Nerve Sheath Tumor

Location: leg

Judy Jones

Spindle Cell Synovial Sarcoma

Location: leg/lung

Jan Maudlin

Myxoid Liposarcoma

Location: gluteus maximus

Sarina Morrison

Undifferentiated Soft Tissue Sarcoma

Location: leg

Chelsey Olafson

Malignant Peripheral Nerve Sheath Tumor

Location: back

Ken Selden

Mesenchymal Chondrosarcoma

Location: spine

Lynn Von Korff

Undifferentiated Pleomorphic Sarcoma, UPS

Location: gluteus maximus

Allan Swartz

Undifferentiated Pleomorphic Sarcoma

Location: thigh

Tell your story

We invite you to tell your sarcoma story as a patient, survivor, or someone who has lost a loved one to sarcoma. Rein in Sarcoma would be honored to share your story on our website. We hope you will share your sarcoma story with us and our readers, who find inspiration and hope in knowing there are others who have been on a similar journey to their own.

Describe an aspect of what you have experienced or learned during your sarcoma journey as a patient, survivor or loved one of someone who has/had sarcoma. Some prompts to help craft your story:
- What was the most unexpected/surprising aspect of treatment?
- What was your most frustrating moment or experience?
- Were there any gestures of kindness that you will remember?
- Having been through what you have, and knowing what you know now- If you could go back in time and tell yourself one thing, what would it be?
- Are there any myths about cancer or treatment that you wish to dispel?
Ideal story length is 350 – 450 words
Include one or two photos of the sarcoma patient/survivor. It works best to attach a jpeg format of the photo(s) to your email.
We highly appreciate the following as we’ve found newly diagnosed patients are very interested in reading stories of people with similar diagnosis.
- Type of Sarcoma
- Year of Diagnosis
- Area of body affected

Will Rein in Sarcoma edit my story?
- Rein in Sarcoma reserves the right to edit your story to fit our format.
Do you accept stories in formats other than written?
- If you would prefer to be interviewed and have one of our volunteers write the story, send us an email at webmaster@reininsarcoma.org. If you would be willing to have your story in video, let us know—we can arrange filming in the Twin Cities.
Can I request to have a story removed from your website?
- Yes, you can request to have it removed at any time. Please email us at webmaster@reininsarcoma.org to have it removed.

Ready to tell your story?

Submit your sarcoma story

Memorial Stories

Survivor Stories

Tell your story

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