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Touching Base – Jan Maudlin Sarcoma Scholar

Kristine Nachbor

Kristine Nachbor’s journey to the Jan Maudlin Sarcoma Scholars program started with elephants.

She planned to study them in West Africa, where she would spend two years completing her Master’s degree from Michigan Tech through a special Peace Corps program. During that time, she would conduct research and teach biology to students.

While teaching in West Africa, she noticed that her students were often sick. “I needed to understand what was going on in their lives, and I couldn’t help them with education alone. I needed to focus on health,” she says. Her research interests changed from animals to the people around her, and she decided to study medicine at the University of Minnesota.

Upon returning home to begin medical school, Kristine made a shocking discovery: three family members had been diagnosed with cancer. Over the next several months, Kristine learned about the disease as both a doctor-in-training and a concerned family member. As part of her commitment to fighting the disease and helping people navigate their cancer care, she applied to Rein in Sarcoma’s (RIS) Jan Maudlin Sarcoma Scholars program.

The Jan Maudlin Sarcoma Scholars program has awarded 50 year-long scholarships to medical students at the University of Minnesota and the Mayo Clinic Alix School of Medicine since 2009. The program is named after Jan Maudlin, a sarcoma survivor diagnosed with Myxoid Liposarcoma in 2001 following several misdiagnoses and treatment delays. Jan and her husband, Tim, fund the program to engage the next generation of physicians and researchers who will care for future sarcoma patients.

Scholarship recipients work with faculty members and Rein in Sarcoma to increase awareness of this rare disease among multiple audiences. Students deliver educational lectures to other medical students and take on special projects. For example, Kristine is leading a public research project to figure out what types of information people wish they had when they or a loved one were diagnosed with cancer; this input will be used to create resources for new patients. She also focuses on physicians, encouraging them to mind the sarcoma alert that pops up in the medical records system if a patient shows symptoms indicative of a sarcoma. And she is evolving the 8th edition of Rein in Sarcoma’s Patient Notebook to simplify the language and transfer the more detailed information to the Rein in Sarcoma website.

Kristine’s medical education and skills are enhanced by the Jan Maudlin Sarcoma Scholars program and will ultimately make her a better physician. In addition to being connected with faculty and plugged into valuable research, teaching, and learning opportunities, she is building crucial skills, such as writing research applications, managing projects end-to-end, and tailoring communications to patients and physicians. Plus, the program allows her to give back and make a meaningful impact. “I am spreading sarcoma awareness more widely than I could otherwise and helping make real changes,” she says.

But most of all, she values the connection with Rein in Sarcoma’s community of patients and caregivers. “Their personal stories are powerful and give me insight into the vulnerable parts of people’s lives and the things they are dealing with,” she says. She also believes that these stories keep the humanity and compassion in medicine and will help the medical community remember sarcoma cancer in the future. Through the Jan Maudlin Sarcoma Scholars program, Kristine Nachbor is making far-reaching contributions towards spreading sarcoma awareness. Whether improving quality of life for patients or educating physicians and the public about this rare disease, her work will have both immediate and long-term beneficial effects on patient outcomes and the community.

2021 Cancer Survivorship Conference

2019 Survivorship Conference

Brenda Schurhamer, Janelle Calhoun and Mike Schurhamer at the 2019 Survivorship Conference

Saturday, April 17,  8:00 a.m. – 11:30  a.m.
University of Minnesota 2021 Cancer Survivorship Virtual Conference

The 15th Annual Cancer Survivorship Conference will be a virtual event with no in person elements. The event is a collaboration between Masonic Cancer Center, University of Minnesota and M Health Fairview, and is an excellent opportunity for survivors, parents, and caregivers, as well as healthcare professionals. The free conference will “focus on maintaining wellness, while exploring the issues survivors and their families often face after cancer treatment. Survivors and their support system will learn how to better advocate for themselves and lead full and productive lives.”

The half-day conference includes: Cancer Survivorship Conference | Cancer Survivorship Program (umn.edu)

  • Cancer Survivorship: Past, Present and Future
  • Surviving Survivorship
  • Cancer and Mental Health
  • Cannabis Use in Cancer Patients

Exhibitors, including Rein in Sarcoma, will have virtual booths – websites – with information, videos, links, and more. You can also connect with exhibit representatives directly to ask questions and learn more about their offerings.

To register, https://survivorship.umn.edu/cancer-survivorship-conference. You will be emailed a confirmation. Web information will be sent in April with directions on how to participate in the virtual event. If you are having difficulty registering for the conference, please try a different browser (Chrome works well). You may register by phone at 612-624-2620 or email survivorship@umn.edu. Registration closes April 15, 2021.

Michael and Brenda Schurhamer to chair 2021 Party in the Park

Mike and Brenda Schurhamer

 

We are honored and excited to have been asked to chair the 2021 Party in the Park. We have enjoyed attending this event since Michael’s Synovial Sarcoma diagnosis in 2006. At that time, we were referred to Rein in Sarcoma and the Party In The Park by Dr. Clohisy. We enjoyed the survivor camaraderie and socializing with the doctors in the informal setting. From the beginning, we felt compelled to donate and volunteer to pay back the support we received.

Over the years we have assisted with Party in the Park, the Patient and Family Support Committee, and attended Fall Fundraisers, Mini-Medical schools, and Winter Gatherings. We hope to continue the RIS mission of supporting sarcoma survivors and loved ones, fundraising for medical research, and heightening sarcoma awareness through education initiatives.

With all the isolation over the past year, we need to be together and support each other. We’re hoping that this year’s event enables all of you to reconnect with each other, finding the friendships and connections we have experienced over the years.

Realizing that a full “in person” event wouldn’t be a safe way to gather, we’re working to come up with a creative hybrid gathering. Those plans are still in the “bubbling up” stages. While this year’s Party may look a little different, we know that it’ll be one to remember. We’re sure whatever the final decision is, it’ll be a fun, creative option that everyone will be able to enjoy. Stay tuned!

Please complete this short survey to help with the planning of the 2021 event.

If you’d like to help with planning the event, we’d love to see you at the Party in the Park Kickoff – Thursday March 18 – evening. Sign up for the virtual kickoff – a Zoom link will be emailed to you.

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