Latest News and Events

Rein in Sarcoma Annual Meeting

The Rein in Sarcoma Board of Directors reviewed the progress and impact of the organization during 2018 and approved several key items, and elected new board members and officers during the Annual meeting on January 21, 2019. Even though 2018 was a year of transition, we were able to expand Rein in Sarcoma's impact focused on our three-pronged mission of education, patient and family support, and funding research. More details will come with our soon to be published Annual Report.

Our Treasurer, Tom McCarthy, reported that the organization maintained excellent financial health with greater than one year of expenses in reserve, with expected growth in both revenue and spending during 2019 as we completed the hiring of a part-time Health Programs Coordinator and full-time Development Director, mid-2018.

The Board approved $150,000 in new Sarcoma research grants at the University of Minnesota, along with $50,000 for research grants at Mayo Clinic, Children's Hospitals and Clinics of Minnesota, and SARC (dependent on NIH approval of the grant proposal). The approved 2019 budget also includes funding RIS Sarcoma Scholars at both at the University of Minnesota and Mayo Medical Schools for the 2019-2020 academic year, and a significant increase in education program spending, involving the Hallie Anne Brown Educational initiative (Natural Language Programming), expanded presentations to medical professionals, and updating RIS educational print materials.

The Board thanked Julie Rose and Jeff Dobbs as retiring board members. Our Nominating Committee presented four excellent candidates for board membership who were elected during the meeting. Read about each new member below.

Newly elected officers are:

President: Blake Hastings - read Blake's message
Vice-President: Lisa Griebel
Secretary: Mitch Atherton
Treasurer: Tom McCarthy

Lisa Griebel

Lisa Griebel is self-employed as President of Crescendo Inc., a Minneapolis performance-consulting firm committed to the growth and development of healthy organizations. She has more than 35 years of experience in leadership and organization development. Helping individuals and organizations realize their Emotional Intelligence (EI) and leadership potential through coaching and training is the primary focus of her practice. Lisa has a Master of Education degree in training and organization development from the University of Minnesota and a 2nd degree Black Belt in Tae Kwon Do.

Lisa connected with Rein in Sarcoma in 2006, shortly after being diagnosed with Fibrosarcoma. Since that time, she has played many roles within Rein in Sarcoma; Party in the Park Chair, RIS Transition Team Leader, Board Member, and RIS Strategic Planning Committee member.

David-Largaespada-PhD

Dr. David Largaespada is an authority on mouse genetics, gene modification, cancer genes, and disease models. His lab specializes in cancer functional genomics using in vivo transposon mutagenesis and targeted nucleases. Current projects are focused on osteosarcomas, brain tumors, and Neurofibromatosis Type 1 syndrome. NF1 is a common cancer predisposition syndrome and these patients are at risk for sarcomas, especially malignant peripheral nerve sheath tumors. He has received Rein in Sarcoma funding in the past and helped with past Party in the Park events as master of ceremonies.

Dr. Largaespada is currently a Full Professor in the Department of Pediatrics and the Department of Genetics, Cell Biology and Development at the University of Minnesota. He is the Associate Director for Basic Research in the Masonic Cancer Center at University of Minnesota and currently holds the Hedberg Family/Children’s Cancer Research Fund Endowed Chair in Brain Tumor Research. Dr. Largaespada was awarded the University of Minnesota McKnight Land-Grant Professorship in 2000 and the American Cancer Society Research Professor Award in 2013. He has published over 170 scientific articles, many in high impact journals such as Science, Nature and Nature Genetics. Dr. Largaespada has co-founded three biotechnology companies.

Eric Lien

Eric Lien is Senior Vice President and Regional Manager with Wells Fargo’s Payments, Virtual Solutions, and Innovation group. His sales team focuses on delivering innovative electronic solutions, protecting payment data, and helping customers improve revenue collection. Eric started with Wells Fargo in 2004 and has held positions within bank’s Corporate Banking, Middle Market, and Treasury Management sales teams. He holds a B.A. from the University of Wisconsin at Madison. He lives with his wife and three daughters in Wayzata, MN. Outside of work, he is active in Habitat for Humanity, The Sheridan Story, and Rein in Sarcoma.

“After experiencing my dear friend, Blake Hastings’ battle with Ewing’s Sarcoma and seeing the toll it took on him, his family, and loved ones, I realized that is something that I never want any human to ever experience. Joining the Rein in Sarcoma board provides the opportunity make a difference and leverage my professional experience to make a personal difference in lives of patients and their families, and hopefully preventing others from encountering this horrible disease.”

Colin Ryan

Colin Ryan is Senior Vice President for Colliers International’s Investment Services division, Colin Ryan specializes in single-tenant and multi-tenant office and industrial investments. Prior to joining Colliers International, Colin worked at CBRE Downtown Chicago as a Research Analyst. He holds a Bachelor of Science in Business Administration from the University of St. Thomas’ Schulze School of Entrepreneurship. Colin’s community involvement includes the University of St. Thomas Dougherty Family College Advisory Board, Children’s Hospital of MN Leadership Council, Former Chair of Golf “FORE” Diabetes.

Colin was motivated to join the Rein in Sarcoma board after experiencing his brother-in-law, Blake Hastings’ sarcoma diagnosis, treatment and the affect it had on their family. He is anxious to leverage his business skills and experience to make a positive impact for sarcoma patients.

Message from Rein in Sarcoma’s New Board President

 
Blake Hastings, RIS President

2019 is set to be an exciting year for Rein in Sarcoma. During 2018, we were able to successful transition from a founder-led organization to one led by an Executive Director, Janelle Calhoun, and new Board President, Deb Cossette. I would like to again thank our founders, Pete and Sue Wyckoff, for their passion, vision, and continued interest in the success of RIS. I would also like to thank Janelle and Deb for a successful 2018, you both handled the transition with grace. To all my fellow board members, committee members, volunteers, and staff, thank you for your tireless work during 2018, your efforts were evident.

I fortunately or unfortunately found Rein in Sarcoma in 2017 during my own battle with Ewing’s Sarcoma. My first interaction with the organization was through the New Patient Starter Notebook, which was educational as I faced an unknown opponent. After receiving incredible support during my treatment I wanted to give back to those that gave me support. I sought out fellow board member and my primary caregiver, Dr. Denis Clohisy. Denis highly recommended meeting Pete Wyckoff and the rest is history - I am all in!

As the incoming 2019 Board President, I am excited about what the new year brings to our organization. We are coming off an excellent year, so the bar has been set extremely high to continue our growth. We will continue to focus our attention on research, education, and patient support. With a very talented staff at RIS coupled with an active Board of Directors, 2019 has a very positive outlook. I am excited to work with all of our Board Members, Staff and Volunteers and getting to know each of you personally in 2019. If you have any comments, suggestions, or concerns, please do not hesitate to reach out to me directly.

Blake Hastings

Winter Gathering Brings Community Support and Learning

2019 Winter Gathering Cake

Rein in Sarcoma’s Winter Gathering took place on Sunday, January 27, 2019 at Bachman’s Lyndale Garden Center. Leading the event, President, Blake Hastings, introduced the event by highlighting Rein in Sarcoma’s mission and key programs.

Rein in Sarcoma has an Educational Program called Red Flags of Sarcoma with the goal to, “Educate [the] public and medical community about early warning signs” about Sarcoma cancers. Thanks to the Barbara Bradley Baekgaard Family Foundation for a generous $100,000 donation in 2016, the Hallie Anne Brown Educational Initiative has helped inform doctors about the early on-set warning signs of Sarcoma. Similarly, Rein in Sarcoma recently approved $150,000 to fund grants for three research proposals at the University of Minnesota to efficiently treat Sarcoma’s.

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Recent and Upcoming Events

Sarcoma Family Picnic

Free picnic for sarcoma patients, survivors and lose who may have lost a close loved one to sarcoma cancer. Hosted by doctors and researchers from Children’s Hospitals and Clinics of Minnesota, Mayo Clinic and the University of Minnesota

Sunflower

2019 Party in the Park “Kick Off” Celebration

Everyone is invited for our 2019 Party in the Park Kick Off meeting and celebration Surley Brewing Company! 6:00 pm – Meet for a bite to eat before the Kickoff 6:30 pm – Social Time with a Free Surley Beer, Soda, snacks and opportunity to meet others. 7:00 pm – Kick Off Meeting and Celebration […]

Sarcoma Family Picnic

Free picnic for sarcoma patients, survivors and lose who may have lost a close loved one to sarcoma cancer. Visit with other sarcoma patients and families as well as doctors and researchers from Children’s Hospitals and Clinics of Minnesota, Mayo Clinic and the University of Minnesota

2019 Party in the Park

19th annual Rein in Sarcoma Party in the Park – an event for the whole family. Including entertainment, children’s arcade, silent auction, sarcoma corner, closing program, luminaries, and unlimited carousel rides. At Cafesjian’s Carousel, and grounds of the Como Park Visitor Center.

Third Annual RIS Golf Challenge

Save the date for the Third Annual Rein in Sarcoma Golf Challenge to be held at the spectacular Edinburgh USA Golf Course, Brooklyn Park, MN.