Latest News and Events

Featured Volunteer Needs – August 2018

RIS Volunteers
RIS depends on volunteers to make our mission a reality. Current volunteer opportunities include:

Marketing Committee Member -
Rein in Sarcoma’s Marketing Committee will develop a comprehensive communications plan that will market and promote the mission of our organization. Committee members will make sure that our marketing tools will follow the organization’s brand. Marketing tools include but are not limited to: website, newsletter, social media, training, PowerPoints, letterhead, t-shirts, and print materials.

Social Media Sub-Committee:

Rein in Sarcoma is seeking a dedicated volunteer who is interested in assisting with social media, primarily Facebook. This volunteer should be organized, creative and have some experience with graphic design and photo editing. As part of the Marketing and Public Relations committee, it is preferred they are able to attend monthly meetings. Social media posts should be engaging, educational and insightful. Volunteer should be willing to seek out sarcoma stories in the media, local stories of sarcoma patients, educational articles about sarcoma, it's various treatments, recent research, articles about survivorship, caregiving etc. Volunteer should also become familiar with our website and stay updated on current Rein in Sarcoma news and events.

For more information about these volunteer positions contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for these positions at: New Volunteer Form

Patient and Family Support Committee

Rein in Sarcoma is looking for compassionate volunteers to help us better serve the needs of sarcoma patients and their loved ones. Our Patient and Family Support Committee reaches out to sarcoma patients and their loved ones by providing peer-to-peer mentoring, organizing social gatherings for those affected by sarcoma, providing gift bags for newly diagnosed and relapsed sarcoma patients, and by providing informational notebooks about sarcoma with hospital resources for sarcoma patients. This committee has monthly meetings and attends gatherings throughout the year.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for this position at: New Volunteer Form

Red Flags Committee

The Rein in Sarcoma Red Flags Committee is looking for volunteers who can help get the word out and educate the public about sarcoma cancers. This committee works with the Sarcoma Scholars, updates the Patient Starter Notebook, attends medical conferences and other events to educate attendees about sarcoma cancers. Volunteers for the Red Flags Committee will attend events and meetings throughout the year.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for this position at: New Volunteer Form

Leiomyosarcoma Symposium Highlights

Annie Achee and Dr. Scott Okuno

Annie Achee, National Leiomyosarcoma Foundation and Dr. Scott Okuno, Mayo Clinic

Andy Hughes

Andy Hughes, 2017-18 Sarcoma Scholar

On July 14th, more than 80 people from Minnesota, the Midwest and nation attended an outstanding day-long Leiomyosarcoma (LMS) Patient Education Symposium at Mayo Clinic. The program was designed by Dr. Scott Okuno for patients, their families and the public. Ten sarcoma specialists practicing at the Mayo Clinic in Rochester, MN spoke on their areas of expertise. The day was filled with opportunities to learn from medical experts as well as talk and connect with one another with renewed hope.

Highlights of the day included information on diagnosing LMS, state of the art treatment options, research and clinical trials. In addition, two LMS patient survivors along with Andrew Hughes, 2017 Rein in Sarcoma Scholar, shared their personal stories and connection to LMS. The program closed with several presenters participating in a 30-minute Q & A panel discussion, and a tour of the Proton Beam Therapy Center.

This education symposium marks the first time Rein in Sarcoma has worked in collaboration as a co-sponsor with another sarcoma organization, the National Leiomyosarcoma Foundation, and the Mayo Clinic, to provide education on soft tissue sarcoma, and specify Leiomyosarcoma. Another education symposium is proposed for the spring of 2020. On the Rein in Sarcoma website, we will post the lectures and slides from the 2018 symposium, once edited and received from Mayo Clinic.

Thank you to all involved in designing, leading and presenting at this excellent symposium! Special thanks to symposium course director and Rein in Sarcoma board member, Dr. Scott Okuno, the Mayo Clinic, the National Leiomyosarcoma Foundation, and the volunteers and families of Rein in Sarcoma who work together supporting mission outreach.2018 LMS Symposium

Team Sarcoma Far Exceeds Goal

Team Sarcoma 25 milers
Team Sarcoma, made up of 31 sarcoma survivors, family, friends and co-workers, those who lost a family member or friend to sarcoma, Rein in Sarcoma volunteers, and University of Minnesota nurses, doctors, and staff, surpassed their goal by raising nearly $80,000 as part of the Chainbreaker bike ride, August 11. One-hundred percent of the dollars raised goes toward cancer research at the University of Minnesota Masonic Cancer Center, including sarcoma research.

Check out the team page and why each person rode – maybe you will be inspired to join us next year, or if you haven’t already, it’s not too late to make a donation in support of the team or a specific rider (accepted through October 12, 2018). Thank you to Team Sarcoma riders, Captain Tom Boardman, and their generous supporters!

While the weather was hot, the haze shielded riders from the sun, but made breathing more difficult. The route was enjoyable south of the Twin Cities – well, maybe not those long hills. And there were no injuries among Team Sarcoma – not even Drs. Cheng and Clohisy on the tandem bike! Yes, Carol Skaja-Jacobsen achieved her goal of 50 miles, as did the rest of the team members, whether 25, 50 or 100 miles.

Rein in Sarcoma partners with an external review committee of sarcoma experts (researcher and physicians) to select two to four research proposals to fund each year at the UMN Masonic Cancer Center. The grant recipients will be announced at our Patient and Family Winter Gathering in January 2019. Read about previous research grants.

Enjoy photos of Team Sarcoma from the Chainbreaker opening ceremony and the ride. Special thanks to photographers Ruth Hoban, Val Lopez Torres, and team support extraordinaire, Janelle Calhoun!

Recent and Upcoming Events

RIS Medical Advisory Board

The Rein in Sarcoma Medical Advisory Board is composed of doctors and researchers from the University of Minnesota, Mayo Clinic, Children’s Hospitals and Clinics of Minnesota and Regions Hospital (HealthPartners).A light dinner will be served (6:00 pm)  and a conference call available at 7:00 pm.

Sarcoma Family Picnic

Free picnic for sarcoma patients, survivors and lose who may have lost a close loved one to sarcoma cancer. Hosted by doctors and researchers from Children’s Hospitals and Clinics of Minnesota, Mayo Clinic and the University of Minnesota

Chainbreaker Training Ride & Team Sarcoma Gathering

We are going to have a training ride and gathering to hand out this year’s shirts at Surly Brewing Co on July 30. Here are the details: July 30th Chainbreaker Fundraiser Team Ride Surly Brewing Co 520 Malcolm Ave SE, Minneapolis, MN 55414 6:00 PM Group meets at Surly 6:30 PM 10-25 Mile Ride Roll […]

UMN Chainbreaker Ride for Cancer Research

Ride with Team- Sarcoma in the UMN sponsored Chainbreaker, or sponsor the team – all money raised goes towards funding UMN Sarcoma cancer research. For more information see the Chainbreaker site.

Volunteer Picnic

Rain or Shine!!!  All RIS volunteers (not just Party in the Park) are invited to join us for this Volunteer Recognition Potluck Dinner and Celebration. Join us in lawn games, a special silent auction, great eating, seeing exclusive pictures and videos of the 2018 Party and celebrating a great Party in the Park. Bring a […]

RIS Board Meeting

Rein in Sarcoma Board Meeting Light dinner available at 6:00 p.m. Meeting starts at 6:30 p.m. Wells Fargo Plaza – Enter off of Southtown Drive (2nd floor of Parking lot), 7900 Xerxes Ave S, Bloomington, MN 55431 Enter from the west side of the tall (22 story) office tower.  We will be using the second […]