Patient and Family Support

As you and your loved ones begin this sarcoma journey, we want to let you know that you are not alone. One of the hurdles facing many sarcoma patients is a sense of isolation. However, while sarcomas are rare, many people here in the Midwest have been on the journey that you are beginning. We are here to support and assist you as you confront and conquer this disease.

Rein in Sarcoma Support Team

Do you have questions about your disease or treatment? Are you feeling scared or alone? We can connect you with a trained volunteer who’s been there.

Talk and Together Time

A monthly gathering of sarcoma survivors and their caregivers. Individuals share their stories, provide updates on their treatment, ask, and answer questions.

RIS Circle of Support Facebook Group

Connects those affected by sarcoma to offer support, ask questions, and share experiences.

Rein in Sarcoma Patient Guidebook

The RIS Sarcoma Patient Guidebook provides information and valuable resources for the newly-diagnosed sarcoma patient. You can order a paper copy of the notebook or download an electronic copy.

Sarcoma tote bags

The RIS Patient and Family Support Committee, made up of many members who are sarcoma survivors, decided that one way they could help newly diagnosed or relapsed patients was to have gift bags available for hospital nurses to give to these patients to show support in their battle against sarcoma.

Our gatherings are held year-round in the Twin Cities. They are a wonderful opportunity to meet and learn from others who are facing sarcoma. It is also a rare opportunity to get and give support. Our gatherings are free of cost for sarcoma patients, survivors, and their immediate families; as well as for persons who have lost a family member to sarcoma.

Check our calendar page to register for any of the events below

Winter Gathering

Winter | January

An afternoon of community fellowship, storytelling, and education. Open to all Sarcoma patients, survivors, family, friends, and those who have lost a loved one to sarcoma.

RIS Sarcoma Family Picnic

Summer | July

Our picnic is held annually for sarcoma patients, survivors, and loved ones in conjunction with the annual Rein in Sarcoma Party in the Park event. Hosted by sarcoma doctors and researchers from the University of Minnesota, Children’s Hospitals, and Mayo Clinic.

Kraig Kuusinen at Rein in Sarcoma Remembers

RIS Remembers

Fall | October

RIS Remembers focuses on people who have lost a loved one to sarcoma cancer in a relaxing, soothing atmosphere. Musical guests, motivational speakers, and grief specialists provide a pleasant and supportive get-together for people who are coping with a recent loss or a long loss.

Interested in getting involved with Patient and Family Support activities?

The RIS Patient and Family Support Committee manages our support activities for sarcoma patients, survivors and their loved ones. The Committee is ran by volunteers—many who are sarcoma patients and survivors—and always welcomes new volunteers.