About Us

Sarcoma Survivors at Rein in Sarcoma’s Annual Winter Gathering

We are a resource for patients and families touched by sarcomas, an uncommon and often misdiagnosed group of bone and soft tissue cancers that strike children and adults alike. We are the largest and best-known sarcoma foundation in the Midwest. Since 2001 we have funded over $2 million in innovative, collaborative and high-impact research and education initiatives at top medical research institutions in MN such as Mayo Clinic, the University of Minnesota and Children’s Hospitals and Clinics of Minnesota.

Our mission

Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers.

Education

Our high-impact education programs increase awareness about sarcoma cancers among the medical community and the general public.

Support

We are dedicated to supporting sarcoma patients, survivors, and those who have lost a loved one to sarcoma. Our year-round events will give you a chance to meet and connect with other sarcoma patients and survivors.

Fund Research

We have funded over 2 million dollars in sarcoma research at top universities and medical institutions in MN such as Mayo Clinic and the University of Minnesota that have propelled groundbreaking treatments.

Our Story

Karen Wyckoff, Rein in Sarcoma founder

Rein in Sarcoma was created by Karen Wyckoff in 2001 to raise awareness and fund cures for sarcoma cancers. The event, which is now our Annual Party in the Park, was held at the Cafesjian’s Carousel, located on the grounds of Como Park in St. Paul, MN. Karen died from Synovial Sarcoma a month after the first event was held. Since then, hundreds gather on a Monday evening in July to rein in sarcoma, and to celebrate Karen’s dream of “a world without sarcoma cancers”.

Read Karen’s story

Through our actions we are sewing our own legacy; a legacy that will live on long after we are gone. No one can take away the memories and love that a person has left behind.
Karen Wyckoff, Rein in Sarcoma founder

Our symbols

The sunflower

A symbol of hope, the sunflower is used by sarcoma communities around the globe to remind those affected by sarcoma that they are not alone and they are strong.

RIS site icon

The carousel horse is the cornerstone of our logo, as the first Party in the Park was held at the Cafesjian’s Carousel currently located at Como Park in St. Paul, MN. The carousel horse reminds us all of Karen’s dream of a world without sarcoma cancers. 

Our Team

Janelle Calhoun

Executive Director

execdirector@reininsarcoma.org

David Stibbe

David Stibbe

Development Director

dstibbe@reininsarcoma.org

Beth Larson

Beth Larson

Administrative Assistant

admin@reininsarcoma.org

Katy Engelby

Education and Communications Manager

 marketing@reininsarcoma.org

2022 Board of Directors

Eric Lien

Eric Lien

President

president@reininsarcoma.org

Conner O'Brien

Conner O’Brien

Vice President

vpresident@reininsarcoma.org

Mitch Atherton

Mich Atherton

Treasurer

treasurer@reininsarcoma.org

Aaron Halbe

Aaron Halbe

Secretary

secretary@reininsarcoma.org

Maureen Anderson

Maureen Anderson

Linda Andrean

John Charlson, MD

Brendan Dillon

Denis Clohisy, MD

Blake Hastings

Blake Hastings

Michelle Kolling

Co-Chair – Patient and Family Support

support@reininsarcoma.org

David Largaespada, PhD

Valeria Lopez Torres

Scott Okuno, MD

Jason Patalonis

Jason Patalonis

Colin Ryan

Emeritus Board Members

  • Pete Wyckoff, Rein in Sarcoma Co-founder
  • Sue Wyckoff, Rein in Sarcoma Co-founder
  • Edward Cheng, MD
  • Tom Dougherty
  • Kathryn Dusenbery, MD
  • Mike Trucano

Amanda Parkes, MD

Amanda Parkes, MD

Medical Director – Oncology, Early Development 

University of Minnesota

L. Chinsoo Cho, MD, MS

Radiation Oncologist

Kathryn Dusenbery, MD

Professor and Department Head, Department of Radiation Oncology

Jutta Ellerman, MD

Associate Professor, Department of Radiology

Christian Ogilvie, MD

Orthopedic Surgeon, Associate Professor, RIS Medical Advisory Chair

Emily Greengard, MD

Assistant Professor, Department of Pediatrics, Division of Hematology, Oncology and BMT

Stephanie Terezakis, MD

Professor, Department of Radiation Oncology

Mayo Clinic – Minnesota

Scott H. Okuno, MD

Oncology, Orthopedic Oncology

Steven I. Robinson, MBBS

Oncologist

Mayo Clinic – Arizona

Safia Ahmed, MD

Radiation Oncologist

Children’s Minnesota

Julie Chu, MD

Hematology-Oncology, Pediatric

Regions Hospitals – HealthPartners

Randy Hurley, MD

Medical Director Cancer Program, HealthPartners


Financial Information

RIS is a non-profit 501-C-3 Tax exempt organization, with a small professional staff supporting a largely volunteer run organization. All members of its Board of Directors serve without compensation. The Board has instituted a “Conflict of Interest and Discharge of Duties” policy to protect the interests of RIS to fully carry out its mission. A copy of this policy can be secured by email.