Latest News and Events

Featured Volunteer Needs – September 2018

RIS Volunteers
RIS depends on volunteers to make our mission a reality. Current volunteer opportunities include:

Patient and Family Support Committee

Rein in Sarcoma is looking for compassionate volunteers to help us better serve the needs of sarcoma patients and their loved ones. Our Patient and Family Support Committee reaches out to sarcoma patients and their loved ones by providing peer-to-peer mentoring, organizing social gatherings for those affected by sarcoma, providing gift bags for newly diagnosed and relapsed sarcoma patients, and by providing informational notebooks about sarcoma with hospital resources for sarcoma patients. This committee has monthly meetings and plans and attends several gatherings throughout the year. Next meeting is September 19.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for this position at: New Volunteer Form

Red Flags Committee

The Rein in Sarcoma Red Flags Committee Rein in Sarcoma Red Flags committee is looking for additional committee members to work on a variety of education programs for healthcare professionals and the public. Program needs include writing, editing and presenting. Depending on the project, time commitment will vary. Our next committee meeting will be scheduled for September 11. If interested, please contact Sue Wyckoff or Naomi Bowman.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for this position at: New Volunteer Form

Marketing Committee Member -
Rein in Sarcoma’s Marketing Committee will develop a comprehensive communications plan that will market and promote the mission of our organization. Committee members will make sure that our marketing tools will follow the organization’s brand. Marketing tools include but are not limited to: website, newsletter, social media, training, PowerPoints, letterhead, t-shirts, and print materials.

Social Media Sub-Committee:

Rein in Sarcoma is seeking a dedicated volunteer who is interested in assisting with social media, primarily Facebook. This volunteer should be organized, creative and have some experience with graphic design and photo editing. As part of the Marketing and Public Relations committee, it is preferred they are able to attend monthly meetings. Social media posts should be engaging, educational and insightful. Volunteer should be willing to seek out sarcoma stories in the media, local stories of sarcoma patients, educational articles about sarcoma, it's various treatments, recent research, articles about survivorship, caregiving etc. Volunteer should also become familiar with our website and stay updated on current Rein in Sarcoma news and events. Next meeting is September 11.

For more information about these volunteer positions contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for these positions at: New Volunteer Form

Featured Volunteer Needs – August 2018

RIS Volunteers
RIS depends on volunteers to make our mission a reality. Current volunteer opportunities include:

Marketing Committee Member -
Rein in Sarcoma’s Marketing Committee will develop a comprehensive communications plan that will market and promote the mission of our organization. Committee members will make sure that our marketing tools will follow the organization’s brand. Marketing tools include but are not limited to: website, newsletter, social media, training, PowerPoints, letterhead, t-shirts, and print materials.

Social Media Sub-Committee:

Rein in Sarcoma is seeking a dedicated volunteer who is interested in assisting with social media, primarily Facebook. This volunteer should be organized, creative and have some experience with graphic design and photo editing. As part of the Marketing and Public Relations committee, it is preferred they are able to attend monthly meetings. Social media posts should be engaging, educational and insightful. Volunteer should be willing to seek out sarcoma stories in the media, local stories of sarcoma patients, educational articles about sarcoma, it's various treatments, recent research, articles about survivorship, caregiving etc. Volunteer should also become familiar with our website and stay updated on current Rein in Sarcoma news and events.

For more information about these volunteer positions contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for these positions at: New Volunteer Form

Patient and Family Support Committee

Rein in Sarcoma is looking for compassionate volunteers to help us better serve the needs of sarcoma patients and their loved ones. Our Patient and Family Support Committee reaches out to sarcoma patients and their loved ones by providing peer-to-peer mentoring, organizing social gatherings for those affected by sarcoma, providing gift bags for newly diagnosed and relapsed sarcoma patients, and by providing informational notebooks about sarcoma with hospital resources for sarcoma patients. This committee has monthly meetings and attends gatherings throughout the year.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for this position at: New Volunteer Form

Red Flags Committee

The Rein in Sarcoma Red Flags Committee is looking for volunteers who can help get the word out and educate the public about sarcoma cancers. This committee works with the Sarcoma Scholars, updates the Patient Starter Notebook, attends medical conferences and other events to educate attendees about sarcoma cancers. Volunteers for the Red Flags Committee will attend events and meetings throughout the year.

For more information about this volunteer position contact Connie Dow at Ph: 844-727-2662 ext 1 or by email.

Apply for this position at: New Volunteer Form

Leiomyosarcoma Symposium Highlights

Annie Achee and Dr. Scott Okuno

Annie Achee, National Leiomyosarcoma Foundation and Dr. Scott Okuno, Mayo Clinic

Andy Hughes

Andy Hughes, 2017-18 Sarcoma Scholar

On July 14th, more than 80 people from Minnesota, the Midwest and nation attended an outstanding day-long Leiomyosarcoma (LMS) Patient Education Symposium at Mayo Clinic. The program was designed by Dr. Scott Okuno for patients, their families and the public. Ten sarcoma specialists practicing at the Mayo Clinic in Rochester, MN spoke on their areas of expertise. The day was filled with opportunities to learn from medical experts as well as talk and connect with one another with renewed hope. Mayo Clinic has graciously offered access to program videos for each topic.

Highlights of the day included information on diagnosing LMS, state of the art treatment options, research and clinical trials. In addition, two LMS patient survivors along with Andrew Hughes, 2017 Rein in Sarcoma Scholar, shared their personal stories and connection to LMS. The program closed with several presenters participating in a 30-minute Q & A panel discussion, and a tour of the Proton Beam Therapy Center.

This education symposium marks the first time Rein in Sarcoma has worked in collaboration as a co-sponsor with another sarcoma organization, the National Leiomyosarcoma Foundation, and the Mayo Clinic, to provide education on soft tissue sarcoma, and specify Leiomyosarcoma. Another education symposium is proposed for the spring of 2020.

Thank you to all involved in designing, leading and presenting at this excellent symposium! Special thanks to symposium course director and Rein in Sarcoma board member, Dr. Scott Okuno, the Mayo Clinic, the National Leiomyosarcoma Foundation, and the volunteers and families of Rein in Sarcoma who work together supporting mission outreach.2018 LMS Symposium

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