Sarcoma Story – Kasey Altman

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Type of Sarcoma: Alveolar Rhabdomyosarcoma – ARMS
Date of Diagnosis: 2020
Location: Gluteus

Only six weeks after finishing 10 months of heavy chemo and radiation treatment, Kasey had a recurrence of her pediatric cancer (Stage 4 Alveolar Rhabdomyosarcoma or ARMS). This rare, aggressive soft tissue sarcoma, returned to her primary gluteal site along with a small nodule in her lung. Since only ~300 cases per year are diagnosed in the United States, there is very little funding for ARMS and sarcomas in general. Only 4% of all NIH funding goes toward pediatric cancers. If cumulative lifetime years lost were used as the metric, the percentage would skyrocket.  

Good news: there are scientists working on proposals to target ARMS and other sarcomas. Kasey and her family are partnering with Rein in Sarcoma to find a cure for all sarcomas. We have established the “Kasey Altman Research Fund,” with 100% of the proceeds going directly to ARMS research.

Listen to Kasey’s story in her own words

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