Support groups allows for patients and families to find others who can relate to their hardships, and understand what they are going through. Remember you are not alone in dealing with sarcoma, be sure to take advantage of any support systems in your community.
Minnesota Sarcoma and Cancer Support Groups
Rein in Sarcoma (RIS) hosts several events throughout the year in the Twin Cities to support sarcoma patients and loved ones. Some of our programs include:
- Gatherings for Sarcoma patients, survivors and loved ones held about every six months at various Twin Cities metro locations.
- Annual Sarcoma Family Picnic– Held on the 4th or 5th Monday of July at Como Park, in St. Paul, MN. The Picnic is an opportunity for sarcoma patients from throughout the Midwest, as well as their loved ones, and those who have lost someone to sarcoma, to seize the afternoon and celebrate our blessings. Hosted by sarcoma doctors and researchers from Children’s Minnesota, Mayo Clinic, and the University of Minnesota, the picnic is provided free of charge.
- Sign up for the RIS Support Network to keep informed of upcoming events, as well as for the RIS Patient Starter Notebook, and peer-to-peer support.
Gilda’s Club – Twin Cities:
Gilda’s Club Twin Cities is a 501(c)3 nonprofit and the local affiliate of the Cancer Support Community, a network of more than 54 supportive, free, and welcoming “clubhouses” where everyone living with cancer can come for social, emotional, and psychological support. Clubs are healing environments where individuals learn from each other with guidance from licensed professionals.
Twin Cities Club: 612-227-2147
National Gilda’s Club (Cancer Support Community)
Brighter Days Grief Center:
Brighter Days Grief Center is a newly established Nonprofit organization serving individuals anticipating or enduring the death of a beloved family member. Mission: To provide a private and compassionate space for individuals anticipating or enduring the death of a family member; to offer access to professional resources; and to instill hope by providing connection to others through peer-based events and activities. 8925 Aztec Dr, Suite #1, Eden Prairie, MN 55347
National Support Groups and Networks:
Many of the sarcoma centers have sarcoma specific support groups. If you do seek treatment in or live in any of these areas, look into other more general cancer support groups in your community. Also, do not minimize the impact that an online support group may offer (especially for people in rural areas). There are also special support groups for loved ones and parents of children with sarcoma.
ACOR (Association of Cancer Online Resources) Mailing Lists
Cancer Support Groups & Information. To find to sarcoma related mailing lists, type “sarcoma” next to mailing list searches. At the time of this publication, there are eight sarcoma related mailing lists.
Adult Bone Cancer Survivors
This site is dedicated to bone cancer survivors (primarily sarcoma) by sharing survival stories to give readers hope, and by communicating through their ABC Café support forum.
Peer-to-Peer Network of the Sarcoma Alliance
The mission of the Sarcoma Alliance Peer-to-Peer Network is to facilitate positive relationships between individuals affected by sarcoma so that they may find emotional support, encouragement and information. The Peer-to-Peer Network consists of individuals affected by sarcoma – survivors, caregivers and loved ones – who wish to correspond with others in the sarcoma community. Sarcoma Alliance staff are available to help participants experience positive matches and to update their participation when needs evolve.
Chemo Angels Support Network
Chemo Angels is a volunteer organization dedicated to adding a ray of sunshine to the lives of those undergoing IV chemo treatment. We believe people going through the physical, emotional and mental rigors of chemotherapy deserve some encouragement. Many of our Chemo Angel volunteers are cancer survivors themselves, or people whose lives have been affected by cancer in some way. Our common denominator is a desire to brighten the lives of cancer patients while they are going through this challenging time.
Based in Minnesota but offered nationwide, Caringbridge offers free, easy-to-create websites that help connect friends and family when they need it most. You or a loved one can create your own CaringBridge website.
Sarcoma Sunflower Brigade
The Sarcoma Sunflower Brigade Members share their journeys, experiences and offer caring support. They March together creating awareness, sharing knowledge and advocating for patients, survivors and caregivers! If you are interested in joining a highly respected Facebook Support Group request to join at: https://www.facebook.com/groups/sarcomasunflowerbrigade/